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National MS Society Launches Economic Burden Survey

September 11, 2020

Multiple Sclerosis (MS) has significant financial and social impacts on people with MS and their families. To better understand these impacts, the National Multiple Sclerosis Society is partnering with the Lewin Group to field important survey that looks at expenses incurred by people affected by MS. These costs are important considerations in healthcare decision-making that could impact patients’ access to medicines or other healthcare services.

This is a confidential survey and the individual data will not be distributed beyond the economic impact research team. Summary level results from the survey will be published and the results of this survey will be used in discussions with policymakers to advocate for policies to improve the lives of people with MS and their families and may help inform future Society initiatives. The survey should take approximately 35 minutes to complete and must be completed by October 8th, 2020. You can save your progress and return later with the URL provided when you save.

For more information about this survey or to begin, please click here.  If you have questions while taking the survey, please contact the Society at MSEconomicImpact@nmss.org or call 202-408-0681. 

Electronic informed consent:  Your participation in this study does not involve any risk to you or your information beyond that of everyday online activity. Participation in this survey is completely voluntary and you may exit this survey at any time.

By clicking on the survey link below, you are agreeing to participate in this survey.

Survey link: https://lewingroup.sjc1.qualtrics.com/jfe/form/SV_d0hWWF8ULz0qbOt

Thank you for taking the time out of your busy schedule to provide this important information.

About Multiple Sclerosis

Multiple sclerosis is an unpredictable, often disabling disease of the central nervous system. Symptoms range from numbness and tingling to blindness and paralysis, and there is currently no cure for MS. The progress, severity and specific symptoms of MS in any one person cannot yet be predicted, but advances in research and treatment are leading to better understanding and moving us closer to a world free of MS. An estimated 1 million people live with MS in the United States. Most people with MS are diagnosed between the ages of 20 and 50, and it affects women three times more than men.

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© 2020 The National Multiple Sclerosis Society is a tax exempt 501(c)3 nonprofit organization and our Identification Number (EIN) is 13-5661935.