National MS Society Launches Economic Burden Survey
September 11, 2020
Multiple Sclerosis (MS) has significant financial and social impacts on people with MS and their families. To better understand these impacts, the National Multiple Sclerosis Society is partnering with the Lewin Group to field important survey that looks at expenses incurred by people affected by MS. These costs are important considerations in healthcare decision-making that could impact patients’ access to medicines or other healthcare services.
This is a confidential survey and the individual data will not be distributed beyond the economic impact research team. Summary level results from the survey will be published and the results of this survey will be used in discussions with policymakers to advocate for policies to improve the lives of people with MS and their families and may help inform future Society initiatives. The survey should take approximately 35 minutes to complete and must be completed by October 8th, 2020. You can save your progress and return later with the URL provided when you save.
For more information about this survey or to begin, please click here
. If you have questions while taking the survey, please contact the Society at MSEconomicImpact@nmss.org
or call 202-408-0681.
Electronic informed consent: Your participation in this study does not involve any risk to you or your information beyond that of everyday online activity. Participation in this survey is completely voluntary and you may exit this survey at any time.
By clicking on the survey link below, you are agreeing to participate in this survey.
Survey link: https://lewingroup.sjc1.qualtrics.com/jfe/form/SV_d0hWWF8ULz0qbOt
Thank you for taking the time out of your busy schedule to provide this important information.
Multiple sclerosis is an unpredictable disease of the central nervous system. Currently there is no cure. Symptoms vary from person to person and may include disabling fatigue, mobility challenges, cognitive changes, and vision issues. An estimated 1 million people live with MS in the United States. Early diagnosis and treatment are critical to minimize disability. Significant progress is being made to achieve a world free of MS.
The National MS Society, founded in 1946, is the global leader of a growing movement dedicated to creating a world free of MS. The Society funds cutting-edge research for a cure, drives change through advocacy and provides programs and services to help people affected by MS live their best lives. Connect to learn more and get involved: nationalMSsociety.org, Facebook, X, formerly known as Twitter, Instagram, YouTube or 1-800-344-4867.