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National MS Society Responds to President Trump’s Speech on Drug Pricing

May 15, 2018

On May 11, 2018 President Trump presented his remarks on lowering drug pricing

In response, the National MS Society released the following statement from Bari Talente, Executive Vice President, Advocacy:

“Medications can only change lives if people can get them. With an average price of $80,000 per year, multiple sclerosis disease modifying medications are out of reach for many with this chronic, lifelong illness. We hope the President’s proposals mark a new focus on patients.

The National MS Society has worked tirelessly over the years to bring attention to the increasing price of MS medications, and the challenges people with MS face in getting the medications they need. In September 2016, the Society announced an initiative to Make MS Medications Accessible. Central to this initiative is a call for all parties involved, patients, drug makers, insurance providers, pharmacy benefit managers, healthcare providers and policy makers to work together to find solutions. 

The Administration acknowledges people living with MS are caught in a “broken system” and we support its efforts to begin this important discussion.  Our experience working to improve access to medications has shown us these are complex issues requiring a detailed and comprehensive response.

We look forward to reviewing the Administration’s Blueprint, working with the Administration and Congress, and continuing our call to action for all stakeholders to join together to work towards solutions that focus on patients. Medications must be affordable, and the process for getting them simple and transparent.”
 

About Multiple Sclerosis

Multiple sclerosis is an unpredictable, often disabling disease of the central nervous system that disrupts the flow of information within the brain, and between the brain and body. Symptoms range from numbness and tingling to blindness and paralysis. The progress, severity and specific symptoms of MS in any one person cannot yet be predicted, but advances in research and treatment are leading to better understanding and moving us closer to a world free of MS. Most people with MS are diagnosed between the ages of 20 and 50, with at least two to three times more women than men being diagnosed with the disease. MS affects more than 2.3 million people worldwide.

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