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People with MS and their Healthcare Providers Can Contribute to a Worldwide Research Effort to Improve Coronavirus Outcomes

April 8, 2020

Collaborators around the world are implementing programs for collecting important information about the impacts and outcomes of COVID-19 infection in people living with MS and related disorders. These efforts will help healthcare providers identify the best way to handle this infection in people with MS, and will give people with MS the information they need to achieve the best outcomes.
For People with MS: For people living with MS, the iConquerMS™ online portal has created a survey so that people can share their experiences coping with the COVID-19 pandemic and what their personal experience has been with COVID-19.
We are interested in learning:
  • What people living with MS know about COVID-19
  • How COVID-19 directly affects people with MS
  • If COVID-19 has resulted in a change in the treatment or quality of life of people with MS
  • What factors affect individuals’ experience of the COVID-19 pandemic 
The iConquerMS platform empowers people living with MS to participate in research, and is governed and driven by people living with MS.The results will be shared with an international initiative gathering data from healthcare providers and people with MS across the world. Pooling COVID19 the data (with individuals’ privacy protected) together will help speed up research into COVID-19 and its effects on people with MS worldwide.
In addition to sharing the collected data with researchers, iConquerMS will also share statistics and study results with iConquerMS participants. 
Join the survey or iConquerMS here
Visit the Society’s Coronavirus Resources Page

For MS Healthcare Professionals: Collaborating organizations including the National MS Society and the Consortium of MS Centers have established the North American MS COVID-19 Clinical Database. Healthcare professionals caring for individuals with MS and other demyelinating diseases (Neuromyelitis optica or MOG antibody disease) who have confirmed or suspected COVID-19 are encouraged to report outcomes in a clinical data collection system.
This effort is harmonized with other international COVID-19 data collection platforms. The goal is to rapidly define the impact of COVID-19 on people with MS and other demyelinating diseases and how factors such as age, comorbidities, and treatments are associated with COVID-19 outcomes.
Access the case reporting tool here

About Multiple Sclerosis

Multiple sclerosis is an unpredictable disease of the central nervous system. Currently there is no cure. Symptoms vary from person to person and may include disabling fatigue, mobility challenges, cognitive changes, and vision issues. An estimated 1 million people live with MS in the United States. Early diagnosis and treatment are critical to minimize disability. Significant progress is being made to achieve a world free of MS.

About the National Multiple Sclerosis Society

The National MS Society, founded in 1946, is the global leader of a growing movement dedicated to creating a world free of MS. The Society funds cutting-edge research for a cure, drives change through advocacy and provides programs and services to help people affected by MS live their best lives. Connect to learn more and get involved:, Facebook, X, formerly known as Twitter, Instagram, YouTube or 1-800-344-4867.


© 2024 The National Multiple Sclerosis Society is a tax exempt 501(c)3 nonprofit organization. Its Identification Number (EIN) is 13-5661935.