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Seeking COVID-19 Survivors with Rehabilitation Experience

December 16, 2020

The National MS Society and other members of the Coalition to Preserve Rehabilitation are collecting stories from COVID survivors and/or their caregivers to make sure that policymakers are not only aware of the issue of the long-term impact of COVID, but design health care policies to address their needs. 

Many types of rehabilitation may be necessary to address long-term COVID symptoms, including physical therapy, occupational therapy, speech therapy, pulmonary therapy, respiratory therapy, cardiac therapy, cognitive therapy, mental health treatment, and any other relevant therapies. Patients and their caregivers often face barriers to accessing rehabilitative care, whether due to coverage policies, a lack of availability or awareness of services, or other policies that may make it difficult to receive the care you need. 
Specifically, we are looking for responses to the following questions: 
  • What long-term impacts have you experienced from COVID-19 after being discharged from the hospital (or other setting of care)? 
  • What forms of rehabilitation have you participated in, for how long, and were they helpful in addressing your long-term symptoms? 
  • What barriers have you encountered in seeking rehabilitation to address your long-term symptoms? 
Please share your story along with responses to the questions above to Joe Nahra, CPR Coordinator, at by December 31, 2020. 

About Multiple Sclerosis

Multiple sclerosis is an unpredictable, often disabling disease of the central nervous system. Symptoms range from numbness and tingling to blindness and paralysis, and there is currently no cure for MS. The progress, severity and specific symptoms of MS in any one person cannot yet be predicted, but advances in research and treatment are leading to better understanding and moving us closer to a world free of MS. An estimated 1 million people live with MS in the United States. Most people with MS are diagnosed between the ages of 20 and 50, and it affects women three times more than men.


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