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Society Joins 48 National Organizations to Support Caregiving Legislation

May 1, 2019

The National MS Society has joined 48 national organizations supporting $20 million in funding for the Lifespan Respite Care Act programs in fiscal year (FY) 2020 as part of the Labor, Health and Human Services, Education and Related Agencies Appropriations bill. Thanks to the hard work of MS activists, the “Dear Colleague” letter supporting this program had 36 co-signers this year, 7 more than last year.

The Lifespan Respite Care Program was established in 2006 and was the only federal program addressing respite issues for family caregivers. Family caregivers in the US provide 80 percent of long term care – including for people living with Multiple Sclerosis. This program has administered grants in 37 states and the District of Columbia who have applied for the program to help coordinate federal, state, and local resources to better streamline the delivery of respite and the training of caregivers themselves. The Lifespan Respite Care Program recognizes caregiving as a lifespan issue and serves families regardless of age or disability.

About Multiple Sclerosis

Multiple sclerosis is an unpredictable, often disabling disease of the central nervous system. There is currently no cure for MS. Symptoms vary from person to person and range from numbness and tingling, to mobility challenges, blindness and paralysis. An estimated 1 million people live with MS in the United States. Most people are diagnosed between the ages of 20 and 50, and it affects women three times more than men.

About the National Multiple Sclerosis Society

The National MS Society, founded in 1946, funds cutting-edge research, drives change through advocacy, and provides programs and services to help people affected by MS live their best lives. Connect to learn more and get involved:, Facebook, Twitter, Instagram, YouTube or 1-800-344-4867.


© 2021 The National Multiple Sclerosis Society is a tax exempt 501(c)3 nonprofit organization. Its Identification Number (EIN) is 13-5661935.