Skip to navigation Skip to content



Survey Alert: Creating a patient-centered approach to healthcare

November 10, 2023

Patient Reported Outcomes for Multiple Sclerosis (PROMS) is an initiative jointly led and coordinated by the European Charcot Foundation and the Multiple Sclerosis International Federation, with the Italian MS Society acting as the lead agency. The PROMS Initiative is focused on improving the health and quality of life of people living with MS, by incorporating their perspectives and experiences into the scientific research and care continuum. The aim is to create a stronger, more patient-centered approach to healthcare, which will benefit those with MS and potentially other patient populations as well.
The PROMS Initiative is asking people with MS to complete a survey that aims to understand what symptoms you experience and which have the greatest impact on your life. It was created by people with MS from different parts of the world and is available in 6 languages: English, French, German, Italian, Portuguese, and Spanish.
The survey will take approximately 15 minutes, but you’ll have the option to pause and come back to it later. After the survey, the anonymized and aggregated results will help develop tools to measure what really matters to people with MS more effectively, that can be used in research and in the clinic. To be contacted with the results, you’ll be asked to share your email with us at the end of the survey.
Fill out the survey here
For more information, visit the PROMS Initiative website at: and please send any questions to:
The closing date for this survey is November 30, 2023

About Multiple Sclerosis

Multiple sclerosis is an unpredictable, often disabling disease of the central nervous system. Symptoms range from numbness and tingling to blindness and paralysis, and there is currently no cure for MS. The progress, severity and specific symptoms of MS in any one person cannot yet be predicted, but advances in research and treatment are leading to better understanding and moving us closer to a world free of MS. An estimated 1 million people live with MS in the United States. Most people with MS are diagnosed between the ages of 20 and 50, and it affects women three times more than men.


© 2023 The National Multiple Sclerosis Society is a tax exempt 501(c)3 nonprofit organization. Its Identification Number (EIN) is 13-5661935.