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Patient Reported Outcomes for Multiple Sclerosis (PROMS) is an initiative jointly led and coordinated by the European Charcot Foundation and the Multiple Sclerosis International Federation, with the Italian MS Society acting as the lead agency. The PROMS Initiative is focused on improving the health and quality of life of people living with MS, by incorporating their perspectives and experiences into the scientific research and care continuum. The aim is to create a stronger, more patient-centered approach to healthcare, which will benefit those with MS and potentially other patient populations as well.
 
The PROMS Initiative is asking people with MS to complete a survey that aims to understand what symptoms you experience and which have the greatest impact on your life. It was created by people with MS from different parts of the world and is available in 6 languages: English, French, German, Italian, Portuguese, and Spanish.
 
The survey will take approximately 15 minutes, but you’ll have the option to pause and come back to it later. After the survey, the anonymized and aggregated results will help develop tools to measure what really matters to people with MS more effectively, that can be used in research and in the clinic. To be contacted with the results, you’ll be asked to share your email with us at the end of the survey.
 
Fill out the survey here
 
For more information, visit the PROMS Initiative website at: proms-initiative.org and please send any questions to: surveyproms@fismets.it
 
The closing date for this survey is November 30, 2023