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Share America Needs More Brain Disease Data

February 11, 2015

Cynthia Zagieboylo, president and CEO of the National MS Society, and Ted Thompson, CEO of the Parkinson’s Action Network, contributed a joint op-ed to on the need for Congress to support a data collection on neurological diseases. The piece highlights the Society’s continued support of the Advancing Research for Neurological Diseases Act (H.R. 292) which will create a nationwide system to track the incidence and prevalence of neurological diseases including MS. 
“MS and Parkinson’s are not 'reportable' diseases, which means the government does not require doctors to inform them when a diagnosis is made. This constantly surprises our elected officials – most think that the government actually knows how many Americans live with various diseases when in reality, very few diseases have accurate counts.” – Cynthia Zagieboylo and Ted Thompson

About Multiple Sclerosis

Multiple sclerosis is an unpredictable, often disabling disease of the central nervous system. Symptoms range from numbness and tingling to blindness and paralysis, and there is currently no cure for MS. The progress, severity and specific symptoms of MS in any one person cannot yet be predicted, but advances in research and treatment are leading to better understanding and moving us closer to a world free of MS. An estimated 1 million people live with MS in the United States. Most people with MS are diagnosed between the ages of 20 and 50, and it affects women three times more than men.


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