TheHill.com: America Needs More Brain Disease Data
February 11, 2015
Cynthia Zagieboylo, president and CEO of the National MS Society, and Ted Thompson, CEO of the Parkinson’s Action Network, contributed a joint op-ed to TheHill.com
on the need for Congress to support a data collection on neurological diseases. The piece highlights the Society’s continued support of the Advancing Research for Neurological Diseases Act (H.R. 292)
which will create a nationwide system to track the incidence and prevalence of neurological diseases including MS.
“MS and Parkinson’s are not 'reportable' diseases, which means the government does not require doctors to inform them when a diagnosis is made. This constantly surprises our elected officials – most think that the government actually knows how many Americans live with various diseases when in reality, very few diseases have accurate counts.” – Cynthia Zagieboylo and Ted Thompson