National Multiple Sclerosis Society
Explore and take action on hot issues.
Ask Congress to provide funding for MS research to stop MS in its tracks, restore what has been lost and end MS forever.
Ensure that regulatory agencies support MS research to stop MS in its tracks, restore what has been lost and end MS forever.
People living with multiple sclerosis sometimes find it necessary for them to modify their homes to increase accessibility and improve safety. Modifying a home may also allow a person with MS to maintain a connection to a job, remain an active member of the community, or even to remain independent. However, these modifications can be prohibitively expensive. People with MS may benefit from financial relief through tax credits, grants or assistance programs.
Every person with multiple sclerosis needs access to a comprehensive network of healthcare providers to meet his or her unique healthcare needs.
People with MS must have access to the healthcare and medications they need to live their best lives.
Medicaid is a joint federal and state program that helps with medical costs for some people with limited income and resources. Medicaid also offers benefits not normally covered by Medicare, like nursing home care and personal care services.
To ensure Medicare is able to provide quality, comprehensive healthcare for older Americans and people with disabilities, , including many living with MS.
People living with MS need access to high-quality, affordable long-term services and supports that meet their needs, and help them remain independent and avoid financial hardship.
The National MS Society and MS activists engage on the following issues at the state and federal level.
Lack of public information on the price of healthcare services, the paperwork required to attain care, and insufficient notification of benefit changes contribute to the burden of living with MS.
Caregivers of people with MS spend about 24 hours a week providing care. Of these caregivers, 64% are emotionally drained, 32% experience depression and 22% have lost a job due to caregiving responsibilities. The Lifespan Respite Care Program helps states better coordinate and deliver quality respite care that improves the health of family caregivers and allows the person living with MS to continue living at home.
Support SB 280 (Jackson) that provides home modification supports for people with disabilities and seniors at risk of falling
Support SB 175 (Pan) and AB 414 (Bonta) which would enforce a state-level penalty for not maintaining health insurance
Support SB 65 (Pan) to ensure more Californians have access to affordable health insurance coverage through Covered California.
AB 1611 will protect patients from surprise emergency room bills from out-of-network hospitals. This bill will ensure that patients only owe the same copay or deductible they would pay for in-network emergency care.
Non-medical switching occurs when an insurance or health care plan mandates a change to medication that the patient is already taking for financial rather than medical reasons.