I am living with MS. I was diagnosed in 1996 one day before my 41st birthday. I will be 60 in July. I experienced my first “episode” when I was pregnant with my daughter in 1982. I was carrying my other baby and I fell. It took visits to 7 different doctors before they were able to diagnose me. It was quite a shock. It was before computers, so I got the encyclopedia out. I thought I was going to die in 5 years. My life changed on that day. I was always very athletic. I played softball, and I ran with my kids. I couldn’t do that anymore. My husband is a great support. He said it’s not just you who has MS, it’s us. WE have MS. In 2001, I fell and broke my ankle. After that I started having to use a cane. Now I use a walker. I have to use a wheelchair for long distances.
I’m eating better, exercising and I’ve lost 40 lbs. This is the best I’ve felt in years. I do wish I could go to physical therapy once a week. It makes me feel better. Due to my insurance PT cap, my access to this care is limited.
I have a great support system. My husband is self-employed and works 7 days a week. He also does the shopping and acts as my “nurse”. He’s amazing. My kids are also really good about helping me.