My husband, Dustin Clark, and I are both living with MS. I was diagnosed before Dustin and I were even married. We have been married 16 years now. I remember that I tried to talk him out of marrying me! But he knew what he was getting into.
We just have to take it day to day. For the most part, I do ok, but there are times when things have been bad. When my hands don’t want to work, Dustin has to tie my shoes. Now, I get to do that for him too. Being a caregiver is a different experience and now I’ve seen both sides of MS.
Medication is a nightmare! I have to get approved each and every year. It takes 6-8 weeks for this process. Each year, they deny my medication and I have to appeal. I went without my meds the entire month of January. If I didn’t have insurance, my drugs would cost $5,000 a month. It is estimated that the cost of living with MS is $70,000 per year. Just think in one year we could have paid the house off entirely instead of medical bills! We each have our own individual insurance deductibles to meet. One person living with MS is expensive…and we are living with two.