Skip to navigation Skip to content

Share

Master Page Does Not Exist

    Services

    Master Page Does Not Exist
    1. Connect with Peers One-on-One

      Search for and connect with a trained peer support volunteer who can provide you with helpful tips, suggestions and emotional support for the challenges that MS throws at you. Connect via one-on-one ongoing telephone or email conversations.

    2. MSFriends®

      MSFriends®connects you with a supportive, empathetic volunteer who understands life with MS and can say, “I've been there, too.” MSFriends meet for up to six months via phone, email or video calls based on your preference. Click here to learn more about MSFriends connection opportunity.

    3. Pharmaceutical Financial Assistance Programs

      A list of pharmaceutical and non profit financial assistance programs to assist with the costs of MS medications.

    4. Children with Multiple Sclerosis

      Soe Mar, MD is conducting a research study to determine if risk factors identified for adult MS are also risk factors for pediatric MS, and if there are interactions between.

      St Louis, MO 63110See Map

    Resources

    Master Page Does Not Exist
    1. Keep S’myelin

      Keep S’myelin is a colorful, engaging, informative, and reassuring newsletter to help children and their parents talk and learn about MS together. Each issue is filled with stories, interviews, games, and activities that highlight a specific topic related to MS, as well as a special section just for parents.

    2. Someone You Know Has MS: A Book for Families (.pdf)

      For children, 5-12. A story about Michael and his family explains MS and explores children’s fears and concerns. Adapted by Martha King from original material by Cyrisse Jaffee, Debra Frankel, Barbara LaRoche, and Patricia Dick.

    3. Plaintalk — A Booklet about MS for Families (.pdf)

      Discusses some of the more difficult physical and emotional problems many families face. By Sarah Minden, MD, and Debra Frankel, MS, OTR.

    4. Alguien que conoces tiene esclerosis múltiple

      Un libro para familias sobre la esclerosis múltiple.

    5. Keep S’myelin: Activity Book for Kids about MS (.pdf)

      28-page colorful, engaging, and interactive publication filled with stories, interviews, games, and activities on a variety of topics related to MS. For children ages 5-12. Due to the impact of COVID-19 we are not able to mail materials at this time. We encourage you to connect with an MS Navigator regarding downloadable publications and videos.

    6. What You Need to Know About Gilenya®

      This video was created in Summer 2019 and features Brenda Banwell, MD. Information is accurate as of then. Please visit http://www.nationalMSsociety.org/meds or www.gilenya.com for the most updated information.

    7. Kids Get MS Too: A Handbook for Parents Whose Child or Teen has MS (.pdf)

      This handbook is a guide for parents with a child or teen with MS.

    8. My MS and E (book)

      Kevin and Eleanor share an unbreakable father-daughter bond, even in the face of his ongoing struggles with multiple sclerosis. This story is a heartwarming tale of how they grow, learn, struggle, and celebrate life in their mantra of Never Stop… Never Quit…

    9. Keep S’myelin: Parent Supplement for Kids Activity Book (.pdf)

      Guide for parent accompanies the activity book for children. Includes tips on how to talk to younger children about MS and learn about MS as a family.

    10. Keep S'myelin: Issue 1 — Intro to MS (.pdf)

      Parents often wonder how much to tell their children about MS. They worry that talking about the MS will be too frightening, too confusing, and too burdensome for the kids to handle. We wanted to make this newsletter available to children because we feel that accurate information, geared to a child's age and abilities, helps that child to understand and cope with changes MS may bring.

    11. Keep S'myelin: Issue 2 — About MS and Feelings (.pdf)

      This issue of Keep S'myelin is all about feelings. As you share the stories and activities with your children, you might want to reflect on some of your own feelings and help your kids identify theirs. This is a chance to share and compare.

    12. The Electrifying Story Of Multiple Sclerosis (book)

      Because Multiple Sclerosis is a disease that someone will live with for years, or even decades, it is important for family and friends to understand what the person is going through and learn how to give support.

    13. Keep S'myelin: Issue 20 (.pdf)

      We don’t know exactly why, but we do know that a person with MS may have lots of energy at certain times of the day, but feel very tired at other times. We know that some people with MS have days or weeks or months when they feel better, and then days or weeks or months when they feel worse.

    14. Keep S'myelin: Issue 19B- Where is the Cure- For Parents (.pdf)

      Reasons to be hopeful for a cure.

    15. Keep S'myelin: Issue 19A- Where is the Cure- For Children (.pdf)

      Where is the cure? Grownups are always saying "be patient". Do you ever wonder why it is taking so long? There are lots of reasons.

    16. Promising MS Research - Recorded Webcast

      Promising MS Research to Repair, Protect and Restore the Nervous System. Moderator Kate Milliken and panelists Dr. Ben Barres, Dr. Jonah Chan, Dr. Timothy Coetzee and Dr. Rhonda Voskuhl. December 5, 2013

    17. Keep S’myelin: Issue 18 (.pdf)

      Once your healthcare practitioner has confirmed that you are experiencing an MS exacerbation, your next step will be to identify strategies for managing the situation. This issue will help you and your children make it through this challenging time.

    18. Family Matters

      MS happens to families, not just to individuals. You probably have many questions about MS – what will happen to my family member with MS, how can we plan, how do we manage the unpredictability of the disease? The National MS Society is here to help you navigate the challenges of living MS with a personalized response to your unique needs.

    19. Keep S'myelin: A newsletter about MS for children

      Keep S’myelin is a colorful, engaging, informative, and reassuring newsletter to help children and their parents talk and learn about MS together. Each issue is filled with stories, interviews, games, and activities that highlight a specific topic related to MS, as well as a special section just for parents.

    20. Keep Smyelin - Issue 17B - Teamwork - For Parents (.pdf)

      This issue is designed to reassure your children that there are lots of people who can help your family cope with MS. The medical team, friends, neighbors, teachers, The National MS Society, MS researchers, all may be members of your family's "team."

    21. Keep S’myelin: Issue 16A — Family Changes - For Children (.pdf)

      Use this issue of Keep S’myelin to help you and your children talk together about the changes MS has brought to your family. Change is difficult for all of us, regardless of age. However, children, in particular, rely on routines; they like to know just what to expect, and for the most part, enjoy the status quo.

    22. Keep S’myelin: Issue 17A — Teamwork - For Chidren (.pdf)

      This issue is designed to reassure your children that there are lots of people who can help your family cope with MS. The medical team, friends, neighbors, teachers, The National MS Society, MS researchers, all may be members of your family's "team."

    23. Keep S’myelin: Issue 15B — Moving with MS - For Parents (.pdf)

      Some people with MS use a cane to help them walk. Others use a wheelchair or a scooter to get around. Still others walk just fine without any help at all. This issue of Keep S'myelin will help you and your kids adjust to new mobility aids.

    24. Keep S’myelin: Issue 15A — Moving with MS - For Children (.pdf)

      Some people with MS use a cane to help them walk. Others use a wheelchair or a scooter to get around. Still others walk just fine without any help at all. This issue of Keep S'myelin will help you and your kids adjust to new mobility aids.

    25. Keep S’myelin: Issue 14 — Invisible Symptoms (.pdf)

      How many times has a family member, friend or colleague said, "I know you have MS, but you look so well!" Use this issue of Keep S'myelin to help your children understand the concepts of variability and unpredictability, and the frustration of having invisible symptoms.

    26. Keep S’myelin: Issue 13 — Fun Activities (.pdf)

      This issue of Keep S’myelin contains lots of family activities and games. Some have MS content — for example, the scrambled answer quiz and the word search — while others are just for fun, like the recipes, jokes, and games. So, we hope this issue serves two purposes: providing ways to learn about MS with your child and suggesting ways to have fun together in spite of MS!

    27. Keep S’myelin: Issue 11 — Feelings & MS (.pdf)

      Everyone in the family is likely to have feelings about MS—the most common being anxiety, anger, sadness and guilt. One of the biggest challenges for families is that each person will experience these reactions at different times and in different ways.

    28. Keep S’myelin: Issue 8 — MS Around the World (.pdf)

      In this issue of Keep S’myelin, your children will learn about the larger world of MS. Since families can sometimes feel very alone in their efforts to cope with the impact of MS, it may come as a surprise to learn that parents and children around the world are sharing this experience—and that MS Societies like ours are working to support their efforts.

    29. Keep S’myelin: Issue 7 — This Is About You (.pdf)

      This issue of Keep S’myelin is filled with stories by children who have a parent with MS. Their stories reflect the variability of the disease itself, providing you with the opportunity to remind your child(ren) that every person’s MS is different.

    30. Keep S’myelin: Issue 5 — Family Life and MS (.pdf)

      This issue of Keep S'myelin is about families. You can use the articles and games to talk with your children about the ways MS has changed your family's routines or affected different members of the family.

    31. Keep S’myelin: Issue 4 — Schools (.pdf)

      School is the backdrop for a very significant part of your child's life. Family and home issues are brought to the school environment just as school experiences influence home life. Use this issue of Keep S'myelin to help you talk with your child about his or her school experiences, especially as they relate to MS in the family.

    32. Keep S’myelin: Issue 16B — Family Changes for Parents (.pdf)

      Use this issue of Keep S’myelin to help you and your children talk together about the changes MS has brought to your family. Change is difficult for all of us, regardless of age. However, children, in particular, rely on routines; they like to know just what to expect, and for the most part, enjoy the status quo.

    33. Keep S'myelin: Issue 3 — About MS & Symptoms (.pdf)

      People with MS may notice that they are having trouble doing everyday things. These troubles and discomforts are called "symptoms."

    34. Making College Work for You (.pdf)

      There is a significant increase in requests for services from students with chronic diseases, like MS. This article explains how you can benefit from this change.

Share

Master Page Does Not Exist
© 2024 The National Multiple Sclerosis Society is a tax exempt 501(c)3 nonprofit organization. Its Identification Number (EIN) is 13-5661935.