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Long-Term Care

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    Services

    1. Ask an MS Navigator

      The Society's MS Navigators help identify solutions and provide access to the resources you are looking for. Call 1-800-344-4867 or see "More info" to contact us online.

    Resources

    1. A Guide for Support Partners (.pdf)

      Practical issues faced by caregivers. Includes resource list. By Tanya Radford. (last updated January 2019)

    2. Self Advocacy for Medical Care and Long Term Care (.pdf)

      This guide is intended to help people with multiple sclerosis engage in self advocacy to better understand and guide their medical care, and, as necessary, manage their long-term care

    3. Long Term Care: Professionals

      Comprehensive list of resources (pdfs and external websites) concerning adult day programs, assisted living facilities, nursing home care and general information.

    4. Long Term Care: CarePartners

      Additional resources for CarePartners including help at home guides

    5. Long Term Care: Education

      Comprehensive list of resources to help educate CarePartners.

    6. Curing MS: How Science Is Solving Mysteries of Multiple Sclerosis (book)

      Dr. Weiner is at the cutting edge of MS research and drug development, and he describes in clear and illuminating detail the science behind the symptoms and how new drugs may hold the key to “taming the monster.” In Curing MS, Dr. Weiner teaches us the “Twenty-one Points” of MS, a concise breakdown of the knowns and unknowns of the disease; tells stories from the frontlines of laboratories and hospitals; and offers a message of hope that a cure can—and will—be found.

    7. Medical Self Advocacy: Palliative Care (video)

      This video features Maura Del Bene, NP-P, ANP, who talks about palliative care and multiple sclerosis.

    8. Medical Self Advocacy: Disability Care Centers (video)

      This video features a discussion with Rachel Stacom, ANP, MSCN, who talks about how people with multiple sclerosis can use disability care centers.

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