National Multiple Sclerosis Society
Looking to connect with other caregivers, family members, or people affected by MS? Self-help groups bring people together who share common life experiences for support, education and mutual aid.
Search for and connect with a trained peer support volunteer who can provide you with helpful tips, suggestions and emotional support for the challenges that MS throws at you. Connect via one-on-one ongoing telephone or email conversations.
Also Found In: I have MS, Caregiver of person with MS, Caregiver Support, Health & Wellness
MSFriends®connects you with a supportive, empathetic volunteer who understands life with MS and can say, “I've been there, too.” MSFriends meet for up to six months via phone, email or video calls based on your preference. Click here to learn more about MSFriends connection opportunity.
A list of pharmaceutical and non profit financial assistance programs to assist with the costs of MS medications.
These organizations offer support and information to family carepartners.
Also Found In: Groups & Discussions
La esclerosis múltiple es una enfermedad de toda la vida, por lo que es sumamente importante que usted se sienta cómodo con el profesional que atiende su esclerosis múltiple y que sea su aliado en su cuidado.
Also Found In: Manejo de síntomas, Información en español
This is a teleconference recording that aired on April 3, 2014. During this teleconference: Participants will be aware of normal bowel and bladder function without MS; participants will learn what dysfunction can occur related to MS; participants will be able to explore these issues with their health care provider for solutions that will lessen the impact on their overall quality of life.
Listen to Recording
Original Air Date: September 23, 2010
Presenters: Pavle Repovic, MD, PhD and Shana Johnson, MD
This teleconference covered an array of new and emerging treatment options available to people with MS.
Listen to Teleconference
Also Found In: Resources and Support, Programs and Services
Original Air Date: February 6, 2014
During this teleconference, Catherine Freemire, LCSW, shared
Tools for Creating Positive Emotion within Relationships, Tools for Making Requests vs. Making Complaints and Tools for Making Repairs in Relationships When Conflict Arises.
Guía para las personas con esclerosis múltiple y sus profesionales de atención médica.
Información sobre la esclerosis múltiple en inglés y español.
Also Found In: Primary-Progressive MS (PPMS), Progressive-Relapsing MS (PRMS)
Learn strategies for supporting the family as a whole, including communication within the family, talking to kids about MS and navigating parenting challenges while living with MS.
Also Found In: MS Education
Improving or maintaining family function is important to helping you, your partner and your children adapt to life with MS. When one member of a family has MS, it's important that the entire family learn how to live with it. In this teleconference you'll learn the tools to maintain stability in your family and communicate freely and effectively about MS.
Also Found In: Bladder Dysfunction, Symptom Management
Original Air Date: October 6, 2011
Also Found In: Exercise
This video features a discussion with George Kraft, MD, who talks about aging and multiple sclerosis.
Watch Video DOWNLOAD TRANSCRIPT
This video features part two of a discussion about pregnancy and multiple sclerosis.
Also Found In: For Children and Families
This video features part one of a discussion about pregnancy and multiple sclerosis.
Also Found In: Insurance and money matters, Healthcare
Symptoms, disease patterns, diagnosis, prognosis, treatment, and research efforts.
Also Found In: Progressive MS and Major Changes
Hear the stories of two families affected by MS from the caregiver's perspective, as they share tips and strategies to maintain the needs and well-being of each family member.
Also Found In: Mobility & Accessibility
The 2-1-1 online community resource database is the most up-to-date and comprehensive database of health and human services in Alaska.
If you have difficulty finding services online, call Alaska 2-1-1.
The 2-1-1 online resource database is the most up-to-date and comprehensive database of health and human services in Idaho.
If you have difficulty finding services online, call the 2-1-1 Idaho CareLine.
2-1-1 Community Resources Online is the most up-to-date and comprehensive database of health and human services in King County. If you have difficulty finding services online, call King County 2-1-1 for assistance.
The 2-1-1 online resource locator is the most up-to-date and comprehensive database of health and human services in Montana.
If you have difficulty finding services online, call Montana 2-1-1.
Also Found In: I have MS, Caregiver of person with MS, Parent has MS, Friend has MS, Relative has MS, Child has MS, Spouse has MS, Sibling has MS, Family & Relationships, Social & Emotional support
The 2-1-1 online resource database is the most up-to-date and comprehensive database of health and human services in Washington State.
If you have difficulty finding services online, call Washington State 2-1-1 for assistance.
Explains the Society’s comprehensive research approaches to stopping MS in its tracks, restoring what’s been lost, and ending MS forever. For nonscientists.
Discusses some of the more difficult physical and emotional problems many families face. By Sarah Minden, MD, and Debra Frankel, MS, OTR.
Also Found In: Vision Problems
It is a myth that the Black community doesn't get MS. Become engaged with programs and resources supporting optimal care and living well with MS.
Also Found In: Research
Identifies risk factors for falling and strategies to reduce those risks.
MS can affect sexuality, both directly and indirectly, but problems can be resolved or minimized. By Rosalind Kalb, PhD.
During this teleconference participants will: Understand the risks and benefits of different treatment options; Learn about new treatments on the horizon;
Understand how different treatment options compare to each other. The speaker, Dr. Graesser, specializes in MS and in addition to general neurology cases, she also provides care for movement disorders, headaches, and neurologic disorders in pregnancy.
Our understanding of the role that cognition and mood play in a person’s experience of multiple sclerosis has expanded dramatically in recent years. Learn why and how people with MS experience changes in mood and cognitive functioning, and the latest information on how these symptoms can be addressed—from physical activity, medications and counseling to self-management strategies.
This booklet is designed for families who are caring for a person with advanced Multiple Sclerosis.
Also Found In: Personal Stories from MS Leaders, Ambassadors, and Researchers
Checklists and worksheets for people who need help at home. Forms for a needs assessment, job description, and employment contract.
Also Found In: Research, Research
Modify a house or apartment to save energy, compensate for reduced vision or mobility, and live comfortably when MS is severe. Many do-it-yourself changes. By Jane E. Harmon, OTR.
Also Found In: Treatments, I have MS, General Information and Newly Diagnosed, Treatments and Symptom Management
Practical issues faced by caregivers. Includes resource list. By Tanya Radford.
Also Found In: Exercise, Partner Programs
The more you raise - the more you earn! There is no limit to what’s possible, so set your National Team fundraising goal high. Our National Team Recognition Program was developed to keep your team motivated.
This handbook is a guide for parents with a child or teen with MS.
Partners and family members of people with MS may experience normal grieving and other emotional changes, including depression.
TLC for MS Caregivers can help the readers get through the first uncertain and difficult days of adjustment, as well as ease the frustration through the various stages of multiple sclerosis and possible future exacerbations as time goes on.
This video features a discussion on strategies for mobility
for people with multiple sclerosis, including automobile modifications.
A comprehensive look at mobility and MS with tips on managing fatigue and spasticity as well as a look at future trends in technology and mobility assistance.
This video features an interview with Fred Foley, PhD, who discusses stress, depression, and anxiety and multiple sclerosis and techniques for dealing with stress.
This video features an interview with Fred Foley, PhD, who discusses stress and multiple sclerosis.
This video features part three of a three-part series of discussion with country music star Clay Walker, who talks about living with multiple sclerosis.
This video features part two of a three-part series of discussion with country music star Clay Walker, who talks about living with multiple sclerosis.
This video features part one of a three-part series of discussion with country music star Clay Walker, who talks about living with multiple sclerosis.
Guide for parent accompanies the activity book for children. Includes tips on how to talk to younger children about MS and learn about MS as a family.
To date, few modifiable risk factors have been found to influence the development or course of MS. Cigarette smoking – which can cause serious health issues including lung cancer, increased risk of infections, and heart disease, and is the primary cause of preventable death in the United States – has also been identified as a risk factor in the development and progression of MS.
Also Found In: Treatments, I have MS, Possible MS, MS Education, Symptom Management, Research & Clinical Trials, Treating MS
Carepartnerships in MS thrive through openness in communication, and finding balance through intentional adjustment.
We often have a picture in our head of what an ideal mom or dad looks and acts like, but parenting can take all shapes. Parents with MS and their children thrive through openness, understanding, love and security -- and you can provide that whether standing up or sitting down. Take care of yourself (manage symptoms and disease) to position yourself for as much involvement with your child(ren) as you want.
Easy to read Q & A format containing information on employment, SSDI, family law, insurance, and more. Offers resources in each chapter, form letters and helpful guides for navigating legal difficulties.
Also Found In: Employment and education, Asuntos laborales
This video features part one of a three-part series focusing on pediatric multiple sclerosis.
Also Found In: General Information and Newly Diagnosed
This video features part two of a three-part series focusing on pediatric multiple sclerosis.
Also Found In: Vitamin D
Managing your health and wellness is an integral part of "living well" with MS. Live Fully, Live Well is a comprehensive wellness program from the National MS Society and Can Do MS, designed for people living with MS and their support partners. Live Fully, Live Well covers topics affecting the whole family living with MS in order to strengthen relationships, increase understanding and promote improved health and quality of life.
Everyone has their own idea of their best life. For people living with multiple sclerosis, the idea of that “best life” can change due to the challenges of having a chronic, unpredictable and lifelong disease. The National MS Society’s Everyday Matters, supported by Genzyme, a Sanofi company, was an interactive national project that uncovered stories of real people facing the everyday challenges that MS can bring on the path to one’s best life.
A form to help people keep track of their prescription drugs, over-the-counter remedies, herbals, vitamins,
or other dietary supplements.
Promising MS Research to Repair, Protect and Restore the Nervous System. Moderator Kate Milliken and panelists Dr. Ben Barres, Dr. Jonah Chan, Dr. Timothy Coetzee and Dr. Rhonda Voskuhl. December 5, 2013
A guide to help families anticipate
and plan for the future to assure loved ones living with MS will receive the support and assistance they need to manage their disease and lead full and enriching lives.
Finding answers and making sound decisions relies on having the right information at the right time. That’s what the National MS Society provides — answers to your questions and access to information about the options available to you.
Trials funded by the National MS Society as of September 2013.
MS happens to families, not just to individuals. You probably have many questions about MS – what will happen to my family member with MS, how can we plan, how do we manage the unpredictability of the disease? The National MS Society is here to help you navigate the challenges of living MS with a personalized response to your unique needs.
Staying Mobile can be accomplished through effective symptom management, the use of mobility aids, automobile adaptations and the use of assistance animals.
Keep S’myelin is a colorful, engaging, informative, and reassuring newsletter to help children and their parents talk and learn about MS together. Each issue is filled with stories, interviews, games, and activities that highlight a specific topic related to MS, as well as a special section just for parents.
This is a resource published by the John Marshall Law School, available for free download. It discusses housing rights of senior citizens with disabilities.
Funding the Cure: Helping a Loved One with MS through Charitable Giving to the National Multiple Sclerosis Society is an elegant, noteworthy book that instructs the reader on using charitable giving strategies for loved ones with multiple sclerosis.
Authored by the editor of the leading travel magazine for people with disabilities, Emerging Horizons, this second edition of Barrier-Free Travel continues to be the definitive guide to accessible travel for those who use a wheelchair, walker or cane, or have any physical ailment that may slow down their gait.
In the face of a medical crisis, Lean on Me shows how to navigate the healthcare waters, find hope, take positive action, and celebrate progress—and supplies authoritative information that can save your life or the life of a loved one.
Full of advice for family caregivers, this one-of-a-kind book written by a family caregiver provides lessons from family caregivers across the country, tips for interacting with the healthcare system to better meet the needs of families dealing with chronic illness, and a cogent presentation of how public policy has a profound effect on even the most intimate details of life in caregiving families.
In collaboration with the National Multiple Sclerosis Society, Meyer’s new book, The Comfort of Home: An Illustrated Step-by-Step Guide for Multiple Sclerosis Caregivers, reviews caregiving options and discusses the financial and legal decisions you may encounter.
Large Phase 3 trials in RR MS. Updated September 2013. Abbreviations Key: AAN – American Academy of Neurology. CIS – Clinically Isolated Syndrome.
Also Found In: Insurance and money matters
What puts people more at risk
of getting MS — do smokers
get it more than nonsmokers?
What protects people from getting
MS — sun exposure? What
contributes to or prevents disease
look at all people with a disease,
and the end goal is to identify a cause and cure.
This document provides an assessment of the National MS Society's operations and research portfolio.
Also Found In: Swallowing Problems
This document explores how potential MS therapies in development (and newly in existence) are changing the treatment of MS.
Also Found In: Symptoms, Treatments, Types of MS
This timeline highlights a selection of major landmarks in research into MS and the launch of programs to propel this research forward.
Also Found In: MS Basics
any people with MS use different types of tools or gadgets to help
them move about, have fun, and do everyday activities. Perhaps your mom or dad has made changes to your house to make it easier and safer to get around. All of these things can be very helpful for
someone with MS, but some may seem strange at first.
This position statement paper, produced by the National MS Society, asks Congress to appropriate $10 million in 2014 for the Multiple Sclerosis Congressionally Directed Medical Research Program.
Also Found In: Depression, Emotional Support
Learn about the National MS Society's view regarding Philanthropy Advisory Service's philosophy regarding intellectual property.
Also Found In: Headache
This document reviews how the National MS Society aggressively pursues studies to identify all common MS-related genes and continue fighting toward ending MS.
This document explores how the National MS Society is working to further research and create strategies to repair the nervous system and restore function to people with MS.
This document includes a letter of appeal for MS patients who may have been denied coverage, as well as supporting facts and information.
This document includes a form letter for MS patients who may have been denied coverage of Lyrica, as well as supporting abstracts.
This document includes a form letter for MS patients who may have been denied coverage of Gilenya, as well as supporting abstracts.
This document includes a form letter for MS patients who may have been denied coverage of Ampyra, as well as supporting abstracts.
Progressive MS is a focus of the National MS Society’s Strategic Response to MS. MS progression can be slow or it can be fast, but it occurs in many of those who have the disease, even in people successfully treated for relapses.
America’s health care crisis prevents many people with MS from living as powerfully as they could. In response, the National MS Society is relentlessly working to shape the health policies of tomorrow.
Nonprofit Fundraisers. The new power players in drug R&D are wearing bright T-shirts.
Also Found In: DVDs
Since 1993 the U.S. FDA has approved several medications for
use in MS. For the first time, we have the ability to reduce disease activity for many people with MS.
Also Found In: For Kids - Keep S'myelin
This fact sheet explores MS, research and hopes for the future.
This is an Affordable Care Act Fact Sheet that explains changes to job-based insurance coverage.
This is an Affordable Care Act Fact Sheet that details changes to Medicare.
This is an Affordable Care Act Fact Sheet exploring that act of buying individual insurance.
Virtually everyone in the United States will face choices about selecting and enrolling in a health insurance plan at different times in their lives. If you or a loved one is living with MS, you know these choices can have significant impact on your personal and family finances as well as your access to health care.
Society-issued letter to 60 Minutes regarding a misleading broadcast.
Distinct differences and specific needs characterize people living with primary progressive MS. The Society and the MS Association of America are striving to meet more of these needs by working together.
List of Current Research Projects Funded by the National MS Society
This document provides guidelines for the National MS Society's support of meetings, workshops and conferences.
This white paper reflects key information gathered from all audiences and was used to inform the development of the National MS Society's Strategic Response for 2011-2015.
Also Found In: Respiration, Breathing Problems, Advanced MS
This brochure outlines the National MS Society's goals as an organization.
Also Found In: Tremor, Occupational Therapy, Physical Therapy
This fact sheet explains about Multiple Sclerosis and the National Multiple Sclerosis Society.
The surest indicator and best tool of an MS activist is information. We will arm you with what you need to fully understand activism and the issues. Here's a brochure about Federal Advocacy (please read and share it!).
Also Found In: Research, Healthcare
This video features Dorothy Northrop, MSW, ACSW, who talks about life planning for a person with multiple sclerosis.
This video features a discussion with A.D. Sadovnick, PhD, who talks about family planning for a person with multiple sclerosis.
This video features a discussion with Rosalind Kalb, PhD, who talks about intimacy and multiple sclerosis.
Also Found In: Healthcare
This video features Deborah M. Miller, PhD, who discusses how multiple sclerosis can affect a personal relationship.
Also Found In: Primary-Progressive MS (PPMS), Living Well with MS
This video features a discussion with Maria Milazzo, NP, CPNP, who talks about pediatric multiple sclerosis.
Also Found In: Research news
This video features a clinical psychologist, who talks about how a family can make adjustments when a member has multiple sclerosis.