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Resources for Researchers

COVID-19: Resources for Researchers

The COVID-19 pandemic is having profound impacts. The National MS Society certainly understands that for many reasons this situation may result in disruptions to ongoing research projects or delays in the ability to initiate projects. Please contact your Society program officer if your work is experiencing disruptions. We will work with you to provide accommodations as best we can.
 
RESOURCES RELATED TO RESEARCH AND COVID-19
FDA Guidance on Conduct of Clinical Trials in relation to COVID-19 (pdf)

NIH guidance for grantees and applicants

National MS Society COVID-19 Information

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In this article

Overview

The National MS Society and other organizations support a variety of research tools and information resources that may be useful to you in your research and/or clinical programs.

Research tools/organizations

Accelerated Cure Repository

The ACP Repository is a large-scale collection of biological samples and data from people with multiple sclerosis, selected demyelinating diseases, and unaffected controls. The Repository not only provides much-needed samples and data to researchers studying MS and related neurological diseases, but also aggregates the results from all of these studies so that they can be analyzed collectively—leading to new findings and breakthroughs. Access biospecimens here.

Atlas of MS Database (from the MSIF)

Information and data on the epidemiology of MS and the availability and accessibility of resources to diagnose, inform, treat, support, manage and rehabilitate people with MS worldwide are available in one database for analysis and comparison at country, regional, and global levels.

International Women in MS 

Founded by women and supportive of all, iWiMS advocates for meritocracy, diversity, parity, and ingenuity in MS research and patient care. iWiMS intends to create bridges between junior and senior investigators, roads between peers, and avenues across various parts of the world. There are many ways to engage with iWiMS, including a mentorship program.

MS DNA/Bio-Repository Bank

The National MS Society supports a unique Biorepository bank at the University of California, San Francisco. Originally dedicated to the ascertainment of genetic material from carefully documented cases of persons with MS and their family members, the repository also banks plasma and serum samples for biomarker and functional studies. In keeping with the variety of family structures seen in the general population, the available datasets includes affected individuals, first-degree relatives and unrelated controls with different ancestral origins. The whole repository totals over 10,000 study participants. These reagents are available to qualified investigators studying MS or other diseases that will help researchers understand the underlying causes of MS. 

MS Minority Research Network

The MS Minority Research Engagement Partnership Network is a multi-stakeholder network that has come together to define and address the issue of racial/ethnic minority underrepresentation in multiple sclerosis research. The Network is spearheaded by Accelerated Cure Project, a patient-founded, non-profit organization that focuses on meeting the research needs and interests of people with multiple sclerosis and research communities. Funding is provided by a Eugene Washington PCORI Engagement Award made by the Patient-Centered Outcomes Research Institute (PCORI). Use this toolkit  to help you learn more about what is currently known about MS in different racial and ethnic minorities, and help you reach out to these communities and work with them in ways that are culturally appropriate, effective, and mutually beneficial. 

MS Outcome Assessments Consortium (MSOAC) Placebo Database

Placebo arms from clinical trial datasets, which were contributed by industry members of MSOAC, are aggregated in the MSOAC Placebo Database. The MSOAC Placebo Database presently includes 2615 individual patient records from 9 clinical trials. This version 1.0 includes records from relapsing-remitting, secondary progressive, and primary progressive forms of MS. Access it here

NARCRMS
The North American Registry for Care and Research in Multiple Sclerosis (NARCRMS) is a physician-based registry and longitudinal database of clinical data and patient-reported outcomes.  NARCRMS collects comprehensive patient and physician information to track incidence, prevalence and the longitudinal history of MS over time.  Physician-collected data will include clinical records, neuroimaging scans, genetic markers, EDSS/cognitive assessments and specimens for the testing/identification of biomarkers for disease progression.  Multiple sites across the US are actively enrolling patients in NARCRMS and additional sites will begin enrolling over the next year.  For more information about NARCRMS or to participate as a patient or site, please visit www.narcrms.org or contact the NARCRMS Operations Group at NARCRMSOps@s-3.com

New York Stem Cell Foundation

Request or share specific iPSC lines through a new search interface, a collaboration between the New York Stem Cell Foundation (NYSCF) Research Institute and eagle-i, (a project of Harvard Catalyst at Harvard Medical School). With this new tool, NYSCF and eagle-i are challenging stem cell researchers to help revolutionize access to stem cell lines. If you produce stem cell lines and believe that greater transparency and accessibility are key to accelerating translational stem cell research, contact NYSCF to get started. NYSCF is also making panels of cell lines visible, searchable, and available to researchers upon request.
  
NIH Scientific Workforce Diversity (SWD) Office
The Scientific Workforce Diversity (SWD) Office leads NIH’s effort to diversify the national scientific workforce and expand recruitment and retention. Learn how to recognize implicit bias and participate in the National Research Mentoring Network - role models may steer students from underrepresented groups toward scientific careers.

The Slifka Study — A Longitudinal Dataset for MS

The Sonya Slifka Longitudinal MS Study involves a representative sample of over 2,000 people with MS, funded by the National MS Society to address a wide variety of research questions. Qualified investigators may apply to the National MS Society to use the Slifka Study interview data and/or blood samples for research projects that are deemed appropriate and of benefit to people with MS. Find out more about the Slifka Study.

Information resources

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