What We Are Trying to Accomplish
To invest in MS research by funding the:
- National Institutes of Health (NIH),
- Multiple Sclerosis Research Program (MSRP) within the Congressionally Directed Medical Research Programs (CDMRP) at the Department of Defense, and
- National Neurological Conditions Surveillance (data collection) System.
Happening at the National Level
National Institutes of Health (NIH)
The NIH is the country’s premier medical research institution and the single largest source of biomedical research funding in the world. In FY 2018 budget, the NIH received a total of $37 billion to fund medical research.
Additionally, advocacy groups are advocating for at least $39.3 billion in funding for the NIH in FY 2019.
Congressionally Directed Medical Research Program (CDMRP)
The CDMRP is administered by the Department of Defense, funded by Congress. The Multiple Sclerosis Research Program (MSRP) is a part of CDMRP which funds important innovative research complementary to that of the NIH.
- More than 23,000 veterans living with MS receive care through the Veterans Health Administration.
- A 2003 Annals of Neurology study found that 5,345 veterans who served in Vietnam and the first Gulf War have been diagnosed with MS that was deemed "service-connected."
The MSRP received a $1 million increase in FY 2016, resulting in a total of $6 million. The Society asks Congress to provide $12 million for the MS Congressionally Directed Medical Research Program in fiscal year 2018.
National Neurological Conditions Surveillance (data collection) System
On December 7, the U.S. Senate approved the 21st Century Cures Act with a 94-5 vote, which included the Advancing Research for Neurological Diseases Act; this followed the House of Representatives 392-26 vote on November 30. The bill authorized the creation of the National Neurological Conditions Surveillance (data collection) System at the Centers for Disease Control and Prevention. In September 2018, Congress approved $5 million for the National Neurological Conditions Surveillance System for FY 2019.
Did your U.S. Senators support the MS CDMRP? Click here to check their voting record!