Skip to navigation Skip to content

Primary Progressive MS: What You Need to Know (book and DVD)


by Nancy J. Holland, Jack S. Burks, and Diana M. Schneider

Publisher: DiaMedica, 2011


Created as a joint project between the Multiple Sclerosis Association of America and the National Multiple Sclerosis Society, this is the first published book dedicated entirely to the Primary Progressive Multiple Sclerosis (PPMS) population. Written by top experts in the field, initial chapters address how PPMS differs from other types of MS, how it is diagnosed, and ongoing research into possible treatments for this form of the disease. Later chapters provide detailed explanations on topics such as: the benefits of rehabilitation; symptom management treatment options; technology and adaptations; maintaining wellness; emotional and quality of life issues; family and social issues; carepartner support; and economic issues. A glossary and an extensive resource listing are included. This is a valuable and informative publication for everyone in the PPMS community.

A companion DVD Primary-Progressive MS: Perspectives on Moving Forward profiles five people living with primary-progressive MS, who offer their strategies for managing the disease and moving forward with their lives. The DVD is divided into 6 short videos and is available for online viewing.

The book is available on Amazon.