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COVID-19 Studies Recruiting People with MS

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Overview

The National MS Society is partnering with organizations and supporting research that seeks to understand the impacts of COVID-19 for people living with MS, both in those who have the infection and those who do not. Other studies may address the impact of COVID-19 vaccines in people with MS.

Learn more about COVID-19 and MS

Challenges and coping strategies

Sponsor: Penn State Berks
Time to complete: 1.5 hours
Researchers are conducting an IRB-approved study to investigate and understand the challenges and coping strategies utilized by adults with disabilities during the COVID-19 pandemic. Each focus group will consist of about five people along with the two investigators, and the discussion will take place over Zoom. The investigators will ask broad questions about your experiences during the COVID crisis and allow you to answer however you please in a conversational format. Participants will be compensated. You are eligible for the study if you are 18, reside in the USA, and can independently give consent for participation.
 
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AI Healthcare Consultant for COVID Vaccine Concerns

Sponsor: University of Illinois at Urbana-Champaign
Time to Complete: Approximately 10-20 minutes interview

Researchers are developing an artificial intelligence agent to understand and address the concerns about the COVID-19 vaccine among people with MS. Participants will be talking with the AI consultant for 10 - 20 minutes in an online meeting. Participants will be compensated for the participation time. Please fill out a brief screening form at the link below. A researcher will contact you to set up the meeting. Please contact MintBotMS@illinois.edu for more information about the study.  

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COVID-19 Vaccines

Sponsor: iConquerMS
Time to Complete: 15-20 minutes
COVER-MS is a study that assesses the experiences of those diagnosed with MS who received the COVID-19 vaccines. If you have received the COVID-19 vaccine and are diagnosed with MS, visit the iConquerMS website to share your experience.

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Personal Experiences

Sponsor: iConquerMS™
Time to Complete: 15-20 minutes
iConquerMS is conducting this survey to learn more about how people affected by MS are dealing with the COVID-19 pandemic and what has been their personal experience with COVID-19.

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Submit Research Questions

Sponsor: iConquerMS™
Time to Complete: 1-2 minutes
iConquerMS is currently looking for research questions on the topic of COVID-19 and MS. What do you wish was better understood on this topic? Do you belong to a racial or ethnic minority group? They would especially like to hear from you. Communities of color have been affected more strongly by COVID-19 and often by MS as well.

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Risk and Impact

Sponsor: University of Pittsburgh
Time to Complete: A series of brief online questionnaires over the course of one year.
A consortium of researchers are conducting a prospective survey study to examine the risk of COVID-19 and the broader impact of the pandemic in people with MS and related disorders as well as community controls. The questionnaires ask about risk factors, precaution measures, change in neurological care, COVID-19 status, neurological and psychosocial outcomes as well as social connectivity. The goal is to use the survey response from the patients and controls to better guide the patient community. For questions about the study, please contact the Principal Investigator Dr. Zongqi Xia and the research team at msstudy2@pitt.edu or 412-360-8203.

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Vaccine Experience and Impact

Sponsor: University of Pittsburgh
Time to Complete: A series of brief online questionnaires over the course of one year.
A consortium of researchers are conducting a prospective online survey study to help understand the current feelings about receiving (or not receiving) the COVID-19 vaccine and to evaluate the tolerability and safety for those who receive vaccination. Any adult age 18 or above with or without a diagnosis of multiple sclerosis could participate.  There is no geographic restriction. The goal is to gather real-world evidence of COVID-19 vaccination to better guide the patient community. For questions about the study, please contact the Principal Investigator Dr. Zongqi Xia and the research team at msstudy2@pitt.edu or 412-360-8203.

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Emotional and Physical Well-Being

Sponsor: Kessler Foundation
Time to Complete: Approximately 30 minutes
Researchers are conducting a study that will help to understand the emotional and physical impact of the COVID-19 pandemic on individuals with MS, traumatic brain injury, and stroke. After agreeing to be in this study, you will participate in an online survey. After you sign the consent form, you will not be identified by name or email address. You must be over the age of 18 to participate.

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