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COVID-19 Studies Recruiting People with MS

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Overview

These research studies seek to understand the impacts of COVID-19 for people living with MS, both in those who have the infection and those who do not.

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Personal Experiences

Sponsor: iConquerMS™
Time to Complete: 15-20 minutes
This survey was created so that people can share their experiences coping with the COVID-19 pandemic and their personal experience with COVID-19. Individuals don't have to be diagnosed with COVID-19 to participate. The results will be shared as part of an international initiative gathering data from healthcare providers and people with MS across the world. iConquerMS will also share statistics and study results with participants.
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Risk and Impact

Sponsor: University of Pittsburgh
Time to Complete: A series of brief online questionnaires over the course of one year.
A consortium of researchers are conducting a prospective survey study to examine the risk of COVID-19 and the broader impact of the pandemic in people with multiple sclerosis (MS) and related disorders as well as community controls. The questionnaires ask about risk factors, precaution measures, change in neurological care, COVID-19 status, neurological and psychosocial outcomes as well as social connectivity. The goal is to use the survey response from the patients and controls to better guide the patient community. For questions about the study, please contact the Principal Investigator Dr. Zongqi Xia and the research team at msstudy1@pitt.edu or 412-360-8203.
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Psychosocial, health, and work changes

Sponsor: University of Wisconsin-Madison
Time to Complete: Approximately 30 minutes for initial survey. Participants will be invited but are not required to complete additional online questionnaires over the course of 18 months.
Researchers at the University of Wisconsin-Madison are researching the experiences of people with MS who were diagnosed with MS within the past 10 years, and the processes by which they adjust to changes related to the COVID-19 pandemic over time. If you would like to participate in this research study, you will be asked to complete an initial and follow-up questionnaires. The first 500 participants who submit completed surveys will receive a $10 gift card for their participation. Participants must be age 18 or above and have been diagnosed with MS within the past 10 years. If you have questions, you may contact the lead researcher, Malachy Bishop, Ph.D., CRC at: mlbishop4@wisc.edu.
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