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COVID-19 Studies Recruiting People with MS

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Overview

These research studies seek to understand the impacts of COVID-19 for people living with MS, both in those who have the infection and those who do not.

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COVID-19 Vaccines

Sponsor: iConquerMS

To help scientists gather data specific to the MS population, the National MS Society is partnering with other organizations and supporting research including COVER-MS, a study that assesses the experiences of those diagnosed with MS who received the COVID-19 vaccines. If you have received the COVID-19 vaccine and are diagnosed with MS, visit the iConquerMS website to share your experience.

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Vaccine hesitancy and access challenges

Sponsor: The American Association on Health and Disability (AAHD)
Time to complete: less than 8 minutes

AAHD is very concerned about the impact of COVID-19 on persons with disabilities and has launched a cross disability survey to look at vaccine hesitancy and access challenges people with disabilities are encountering. The objective of the COVID-19 and Vaccine Survey for Adults with Disabilities is to better understand the reasons adults with disabilities have or will take the vaccine, are not sure about taking the vaccine, or have decided not to take the vaccine.  This information will be shared with the disability community, health and public health professionals, policymakers, and researchers. The survey will be open from March 12, 2021, to March 26, 2021.
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Personal Experiences

Sponsor: iConquerMS™
Time to Complete: 15-20 minutes
This survey was created so that people can share their experiences coping with the COVID-19 pandemic and their personal experience with COVID-19. Individuals don't have to be diagnosed with COVID-19 to participate. The results will be shared as part of an international initiative gathering data from healthcare providers and people with MS across the world. iConquerMS will also share statistics and study results with participants.
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Risk and Impact

Sponsor: University of Pittsburgh
Time to Complete: A series of brief online questionnaires over the course of one year.
A consortium of researchers are conducting a prospective survey study to examine the risk of COVID-19 and the broader impact of the pandemic in people with multiple sclerosis (MS) and related disorders as well as community controls. The questionnaires ask about risk factors, precaution measures, change in neurological care, COVID-19 status, neurological and psychosocial outcomes as well as social connectivity. The goal is to use the survey response from the patients and controls to better guide the patient community. For questions about the study, please contact the Principal Investigator Dr. Zongqi Xia and the research team at msstudy2@pitt.edu or 412-360-8203.
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Emotional and Physical Well-Being

Researchers at the Kessler Foundation are conducting a study that will help to understand the emotional and physical impact of the Covid-19 pandemic on individuals with Multiple Sclerosis, traumatic brain injury, and stroke. After agreeing to be in this study, you will participate in an online survey which will take roughly 30 minutes to complete. After you sign this consent form, you will not be identified by name or email address. You must be over the age of 18 to participate.
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Vaccine Experience and Impact

Sponsor: University of Pittsburgh
Time to Complete: A series of brief online questionnaires over the course of one year.
A consortium of researchers are conducting a prospective online survey study to help understand the current feelings about receiving (or not receiving) the COVID-19 vaccine and to evaluate the tolerability and safety for those who receive vaccination. Any adult age 18 or above with or without a diagnosis of multiple sclerosis could participate.  There is no geographic restriction. The goal is to gather real-world evidence of COVID-19 vaccination to better guide the patient community. For questions about the study, please contact the Principal Investigator Dr. Zongqi Xia and the research team at msstudy2@pitt.edu or 412-360-8203. 
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