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COVID-19 Studies Recruiting People with MS

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Overview

The National MS Society is partnering with organizations and supporting research that seeks to understand the impacts of COVID-19 for people living with MS, both in those who have the infection and those who do not. Other studies may address the impact of COVID-19 vaccines in people with MS.

Learn more about COVID-19 and MS

Remote interview study: Healthcare during the pandemic

Sponsor:  University of Pittsburgh Medical Center 
Time to complete: 45-50 minutes
Researchers at University of Pittsburgh Medical Center are seeking volunteers for a research study seeking to describe the barriers and facilitators to engagement in healthcare for people with disabilities during the COVID-19 pandemic. You may qualify if you are: a person with a disability or a care provider for someone with a disability; and at least 18 years old. Participation in the study involves one or two interviews (approximately 45-60 minutes). Interviews will be on the phone or on Zoom video conference. Participants will be compensated.  For more information, contact study staff at 412-396-1511 or email colbertam2@upmc.edu 

MS Trial Alert: COVID-19 Vaccine Booster in People with MS

Sponsor: National Institute of Health’s National Institute of Allergy and Infectious Diseases.
Time to Complete: 13 months
 Investigators nationwide are recruiting 900 adults living with multiple sclerosis and other disorders, and up to 300 children with multiple sclerosis for a clinical trial to assess immune system responses to extra dose(s) of the authorized COVID-19 vaccines.
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Impact of the COVID-19 Pandemic on Fatigue

Sponsore: University of Michigan
Time to Complete: 30-40 minutes
All individuals with Multiple Sclerosis are invited to participate in a survey to help learn more about fatigue in MS and the impact of the COVID-19 pandemic on fatigue. Questions will include demographics, fatigue severity and how fatigue impacts your daily activities, questions about other MS symptoms, and questions about how the COVID-19 pandemic impacted fatigue.

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AI Healthcare Consultant for COVID Vaccine Concerns

Sponsor: University of Illinois at Urbana-Champaign
Time to Complete: Approximately 15-20 minutes 
Researchers are developing an artificial intelligence agent to understand and address the concerns about the COVID-19 vaccine among people with MS. Participants will be talking with the AI consultant for 15 - 20 minutes in an online meeting. Participants will be compensated for the participation time. Please fill out a brief screening form at the link below. A researcher will contact you to set up the meeting. Please contact MintBotMS@illinois.edu for more information about the study. 
 
Link to screening form

COVID-19 Vaccines

Sponsor: iConquerMS
Time to Complete: 15-20 minutes
COVER-MS is a study that assesses the experiences of those diagnosed with MS who received the COVID-19 vaccines. If you have received the COVID-19 vaccine and are diagnosed with MS, visit the iConquerMS website to share your experience.

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Personal Experiences

Sponsor: iConquerMS™
Time to Complete: 15-20 minutes
iConquerMS is conducting this survey to learn more about how people affected by MS are dealing with the COVID-19 pandemic and what has been their personal experience with COVID-19.

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Submit Research Questions

Sponsor: iConquerMS™
Time to Complete: 1-2 minutes
iConquerMS is currently looking for research questions on the topic of COVID-19 and MS. What do you wish was better understood on this topic? Do you belong to a racial or ethnic minority group? They would especially like to hear from you. Communities of color have been affected more strongly by COVID-19 and often by MS as well.

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Risk and Impact

Sponsor: University of Pittsburgh
Time to Complete: A series of brief online questionnaires over the course of one year.
A consortium of researchers are conducting a prospective survey study to examine the risk of COVID-19 and the broader impact of the pandemic in people with MS and related disorders as well as community controls. The questionnaires ask about risk factors, precaution measures, change in neurological care, COVID-19 status, neurological and psychosocial outcomes as well as social connectivity. The goal is to use the survey response from the patients and controls to better guide the patient community. For questions about the study, please contact the Principal Investigator Dr. Zongqi Xia and the research team at msstudy2@pitt.edu or 412-360-8203.

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Vaccine Experience and Impact

Sponsor: University of Pittsburgh
Time to Complete: A series of brief online questionnaires over the course of one year.
A consortium of researchers are conducting a prospective online survey study to help understand the current feelings about receiving (or not receiving) the COVID-19 vaccine and to evaluate the tolerability and safety for those who receive vaccination. Any adult age 18 or above with or without a diagnosis of multiple sclerosis could participate.  There is no geographic restriction. The goal is to gather real-world evidence of COVID-19 vaccination to better guide the patient community. For questions about the study, please contact the Principal Investigator Dr. Zongqi Xia and the research team at msstudy2@pitt.edu or 412-360-8203.

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