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Clinical Trial Resources

NARCOMS Patient Registry

This registry of people willing to participate in MS research was initiated by the Consortium of MS Centers to facilitate multicenter studies. As of May 2007, the number of participants surpassed 32,000. Information is available in Spanish. Read more about Narcoms here, read NARCOMS Now magazine, or visit the website by clicking below.

Visit NARCOMS

Visit NARCOMS

Free Webinar on Clinical Trial Participation

AWARE for All is a free clinical research education program from the Center for Information and Study on Clinical Research Participation. Speakers will discuss what to expect from a clinical trial
and the importance of participating. Visit exhibits from local 
health and wellness
organizations

Learn More

Learn More

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New and better therapies would not be possible without people living with MS who are willing to serve as volunteers in clinical trials. For more information, explore these other sites and resources:

CISCRP

The Center for Information and Study on Clinical Research Participation (CISCRP) is a first-of-its-kind nonprofit organization dedicated to educating and informing the public, patients, medical/research communities, the media, and policy makers about clinical research and the role each party plays in the process. CISCRP assists the public in locating clinical trials relevant to their needs and interests.

ClinicalTrials.gov

A registry and results database of publicly and privately funded clinical studies of human participants conducted in all 50 states and in 200+ countries around the world. ClinicalTrials.gov is a free service of the National Institutes of Health (NIH) and is maintained by the U.S. National Library of Medicine (NLM). Search now.

NIH Clinical Trials and You

Visitors to the website will find information about: The basics of clinical trial participation, first hand experiences from actual clinical trial volunteers, explanations from researchers, and links on how to search for a trial or enroll in a research matching program. Health care professionals can read about evidence-based strategies for talking with patients about trials, print audience-tested posters to help promote trials in clinics and offices, and find other educational materials.

ResearchMatch.org

A not-for-profit secure Web site, designed to provide people who are interested in participating in research the opportunity to be matched with studies that may be the right fit for them. ResearchMatch is a collaborative effort of the national network of medical research institutions affiliated with the Clinical and Translational Science Awards, a part of the National Institutes of Health.

Books

The Gift of Participation: A Guide to Making Informed Decisions About Volunteering for a Clinical Trial
by Ken Getz
Order through CISCRP

Human Trials: Scientists, Investors, and Patients in the Quest for a Cure
by Susan Quinn
Order through Amazon.com

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