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Surveys and Other Research Studies

Researchers Need You!

Listed below are two opportunities for people with MS to move MS research forward, NARCOMS and iConquerMS™. These are separate efforts and there's no restriction to participating in both. Read more below.

NARCOMS Patient Registry

This registry of people willing to participate in MS research was initiated by the Consortium of MS Centers to facilitate multicenter studies. As of May 2007, the number of participants surpassed 37,000. Information is available in Spanish. Read more about Narcoms here or visit the website by clicking below.

Visit NARCOMS

Visit NARCOMS

Join iConquerMS™ to Propel Research Forward

Your voice can be a part of MS research by participating in iConquerMS™. Data gathered will be used by researchers to find patterns that might not be visible otherwise, which have the potential to lead to identifying the causes of MS, determining who will best respond to various therapies, and find new improved treatments for the disease.

Visit iConquerMS™

Visit iConquerMS™

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In this article

Overview

NOTE: The COVID-19 pandemic may affect the status of the studies listed on this website. Trial recruitment or visits may be postponed, and responses from study coordinators may be delayed. If you are enrolled in a study, your study coordinator will likely reach out to you with any changes. Learn what you need to know about COVID-19

The National MS Society is committed to delivering accurate and reliable information to everyone affected by MS, and subsequently reviews many requests for participation in MS surveys. Following is a list of surveys (mostly online) and other research studies seeking to recruit people with multiple sclerosis that has been reviewed by the Society and offered as information only, not an endorsement or recommendation. The surveys/studies are being conducted either by investigators seeking to answer scientific or health policy questions about MS, or by pharmaceutical or medical device companies conducting market research efforts to develop or improve products for people with MS. Further details about each survey/study, as well as contact information, are included below.

If you would like us to post a study on these pages, please email studies@nmss.org to find out what information you need to submit for review.

Physical Therapy Program at University of Wisconsin-Milwaukee Seeking Participants

UW Milwaukee’s Doctor of Physical Therapy (DPT) program is recruiting participants with a diagnosis of MS to attend physical therapy treatment sessions with students. A faculty member or members will oversee and coordinate the program.

When:  Mondays and / or Wednesdays in October to early November 2021
  • Monday Time Slot 11am-3:30pm
  • Wednesday Time Slot 2-4pm
Where:  UWM Klotsche Pavillion: 3409 N Downer Ave, Milwaukee, WI 53211
and / or UWM Northwest Quadrant: 2020 E Newport Ave, Milwaukee, WI 53211
*virtual options available as needed based on up-to-date health guidelines
*wheelchair accessible facilities

Participants will be compensated for their time, including parking.

What: Weekly or bi-weekly sessions with supervised student physical therapists for individualized, evidence-based treatment (subject to participant schedule and availability)

Why:  To create valuable learning experiences for students in preparation for clinical work. Fostering relationships with members of the Milwaukee community and beyond to provide evaluation and treatment of neurologic impairments.

How do I find out more?  Please directly contact Caitlyn Anderson, PT, DPT, NCS, GCS at ande2847@uwm.edu or text / call 732-397-9953

Share MS Experience in 60-Minute Interview: Secondary and Primary Progressive MS

Pinpoint Patient Recruiting is seeking to connect with people diagnosed with secondary progressive MS and primary progressive MS to be interviewed about their experiences. Fulcrum Research Group, an independent healthcare research firm, is conducting research on behalf of a pharmaceutical company client seeking to better understand the symptoms and treatment of multiple sclerosis. 
 
Participants with secondary progressive MS will be asked to complete a 15-minute pre-interview survey and a 60-minute telephone conversation with a senior healthcare interviewer and a 15-minute online activity. Questions will cover diagnostic history, treatment history, sources of informaiton and support, early symptoms and doctor visits. If you qualify and complete all the activities, you will be compensated.

Anyone interested in participating or finding out if they qualify can complete a short survey here: https://www.pinpointpatientrecruiting.com/multiple-sclerosis or contact the project manager, Kim Slusher at kim@pinpointpatientrecruiting.com.

The Psychosocial and Quality of Life Impact of MS in the First Five Years

Researchers at the University of Wisconsin-Madison are researching how people who have recently been diagnosed with MS (within the last five years) adjust to the impact of MS-related changes on health and quality of life over time, and how social and personal resources affect their adjustment. If you would like to participate in this research study, you will be asked to complete a questionnaire. The survey will take approximately 20 minutes to complete. Participants who complete and return this survey before August 1, 2021 will be compensated. Participants must be age 18 or above and have been diagnosed with MS within the past 5 years. The researcher leading this study, Malachy Bishop, Ph.D., CRC can be reached at (email: mlbishop4@wisc.edu). To participate in the study, please see the link:

https://uwmadison.co1.qualtrics.com/jfe/form/SV_6z2K4s5i6HiMqIS

Individuals with Relapsing-Remitting MS Wanted for a Research Imaging Study: (MA)

Participants are being recruited for a study looking at the expression of histone deacetylases (HDACs), which are proteins that are important for turning genes on/off, in the brain of multiple sclerosis patients and healthy individuals. Participation includes one visit to the Massachusetts General Hospital Martinos Center to answer questions about your medical history and medications, memory tasks, and for one MR-PET scan (up to 90 minutes).

In order to participate, you must:
• Be between 18 and 60 years old
• Be able to have an MRI and PET brain scan
• Have no known history of major medical, psychiatric, or neurological illness (except multiple sclerosis)

Location: MGH Martinos Center for Biomedical Imaging, Charlestown Navy Yard
Time Commitment: One visit of up to 4.5 hours
Participants may receive compensation upon completion of the study

This study is being conducted by Jacob Hooker, PhD. If you are interested in participating or would like more information please contact our study team by phone (617-643-4567), or e-mail (ImagingStudy@mgh.harvard.edu).

Online Community: People who are living with Relapsing-Remitting or Secondary Progressive MS

C Space Health, a healthcare research agency, is searching for people with MS  in the US who are living with relapsing-remitting and secondary progressive MS to participate in an online community where they will participate in research activities like surveys and discussions.  Their goal is to connect with and learn from patients in order to better understand patients’ perspectives and needs to help create new treatments and improve outcomes. The research is anonymous and conducted 100% online.
 
Participants who successfully join the research community will be compensated. The average time commitment is usually only 5 – 15 minutes/week.
 
The initial step is an online qualifying survey that consists of 21 multiple choice questions. If you would like to participate, please click here

If you have questions, please contact smasters@cspace.com.

Zoom/Phone Interview: Experience with Acthar Gel

The Px Group, a patient engagement company, is working on behalf of a pharmaceutical company to learn more about the experience of people living with MS who have tried Acthar® Gel (repository corticotrophin injection). The Px Group is conducting 60-90 minute interviews over Zoom to learn more about the experience of people living with MS, focusing on challenges with disease control and Acthar Gel use.
 
To participate, individuals must be over 18, be living with MS, speak English, and have recent (within past 2 years) experience with Acthar Gel.
 
You will be compensated for your time. If you are interested, please contact Kyle at klasher@thepxgroup.com.

Zoom/Phone Interviews: Provide feedback on intermittent catheter use

Researchers at Aurie are interested in learning about how people living with MS use and choose their intermittent catheters and are conducting 30 minute interviews over Zoom and phone to learn more. 
 
Participation and Procedure:
-In order to participate, you must be over the age of 18, speak English, and use intermittent catheters to urinate.
-Interviews will last approximately 30 minutes.
-Participation is voluntary and participants can stop at any time. Participants will be compensated at the end of the interview.
-Interview notes will not be published, and will only be used to inform the design and development of a reusable catheter system.
 
If you would like to participate, please email souvik@livewithaurie.com.

Remote Study (iPhone): Tracking MS Symptoms Using a Smartphone

Scientists at Kessler Foundation are studying how to track multiple sclerosis symptoms using a smartphone. They are seeking persons with MS 18 years old and older who own an iPhone. The study is completely remote. You will complete games and surveys on the computer and smartphone over the course of 3 weeks (1 hour on the first day, and 20 minutes per day on subsequent days). You will be compensated for your time. If interested, please contact Michelle Chen, PhD, at mchen@kesslerfoundation.org.
 
 

Study for Catheter Users (Houston, TX, May 2021)

CathBuddy, Inc. is recruiting individuals in the Houston, TX area for an in-person study to test a catheter cleaning system in May 2021. Participants must be catheter users over 18 years old. Eligible participants will be asked to catheterize an anatomical model with new catheter prototypes and provide feedback. Participants will also test and provide feedback for a new catheter carrying case. Sessions will last about 2 hours and participants will be compensated for their time. Complete the screening survey or contact souvik@cathbuddy.com for more information.

Interview Study: Women with Physical Disabilities and Reproductive Services

Researchers at the City University of New York (CUNY) School of Public Health are seeking participants for a study exploring the experiences of those with physical disabilities receiving reproductive health services, particularly birth control.  

The study involves an online interview that is expected to last approximately 30 minutes to 1 hour. The interview will be audio-recorded for transcription and review. All participants will be compensated. 

You may be eligible to participate if you are a woman with a physical disability, or non-binary, gender non-conforming, or trans individuals who were born with a uterus, are between 18 and 44 years old, able to speak English, and living in the United States. 

If you are interested in participating or would like to learn more, please visit https://bit.ly/3qw1vH7, or email Principal Investigator, Gabrielle deFiebre at Gabrielle.deFiebre01@sphmail.cuny.edu.

Online Survey: Shift work and impact on people with chronic disease

Researchers at Kent State University at Salem Department of Psychological Sciences are interested in how shift work impacts people with chronic conditions physiologically and cognitively. They are also interested in how chronic conditions impact people who are not shift workers.
 
Participation and Procedure:
-In order to participate, you must be over the age of 18 and speak English.
-You do not have to be a shift worker or have a chronic condition to participate. Anyone over the age of 18 is able to participate.
-Participation is voluntary and participants can stop at any time.
-They are asking participants to complete an online survey that will take 20-30 minutes to complete. This survey is accessible on smartphones. The survey will ask participants about their status as a shift worker and if they have a chronic condition and also includes questionnaires about general health, sleep quality, pain perception, and memory. This survey also has two timed memory tests at the end.
 
If you would like to participate, please click this link: https://kent.qualtrics.com/jfe/form/SV_8BcIpfIpJMYANfL"
 
If you need any additional information or if you have questions or concerns, please contact hshastee@kent.edu.

Online Survey: Fall Prevention

The University of Illinois at Chicago, Physical Therapy department is conducting a survey study. The survey is about the user perspective of a new fall prevention method "perturbation-based balance assessment and treatment". There are several devices to induce the perturbation. The online survey aims to explore the user knowledge and perspective of these devices.  
 
The researchers are recruiting 4 populations: 
  1.     Healthy older adults (60 and above)
  2.     People with neurological disorder 18-90 (such as MS, Parkinson’s, stroke)
  3.     People who perceive themselves at risk of fall. 
  4.     People who have been diagnosed with any balance disorders. 
If you are in the Chicago land area, you will be given the opportunity to come to the lab and try out the available devices. At the end of the online survey there is a space for your contact information if you choose to visit our lab. If you choose so, you will be contacted for further details. Also, upon your visit, you will be compensated.
 
The Survey link: User Survey For New Fall Prevention Method
 
Please contact Nowf (Nina) Alfallaj nalfal2@uic.edu if you have trouble accessing the survey, or for any further explanation. 
 
The study is under the supervision of Dr.Tanvi Bhatt. 

Online Survey: Accessibility of community transportation

Faculty and graduate student researchers in the Occupational Therapy Department at San Jose State University are interested in further understanding the accessibility of community transportation including driving personal vehicles. We are studying the importance of driving and other forms of transportation, and how transportation relates to participation in daily activities. We are looking for adults age 25 and older to take a brief online survey (less than ten minutes).

This survey and its subsequent data will add value to the body of health science evidence and improve the health in our community.

Participation in the survey is completely confidential and voluntary. No personally identifiable information will be associated with the responses to any reports of the data. No personally identifiable data will be distributed, shared, or sold to anyone and all data will be confidential.

Every person who starts the survey is eligible to enter a drawing for a gift card.

The survey can be accessed from the following link:
https://sjsu.qualtrics.com/jfe/form/SV_9LfJELD7c23g8bX

If you have any questions, concerns or trouble accessing the survey, please contact Cindy Cheung at:  cindy.cheung@sjsu.edu or Dr. Winifred Schultz-Krohn at winifred.schultz-krohn@sjsu.edu

2021 National Survey on Health and Disability Information and Consent

The Institute for Health & Disability Policy Studies at the University of Kansas supports the practice of protection for human subjects participating in research. The following information is provided for you to decide whether you wish to participate in this study. You should be aware that even if you agree to participate, you can withdraw at any time without penalty.

They are conducting this study to better understand the experiences of working-age adults with disabilities and/or chronic health conditions in getting and keeping health insurance, how having certain types of insurance coverage affects your life and how the COVID-19 pandemic is also affecting your life right now. This will entail your completion of a survey. Your participation is expected to take approximately 20-30 minutes to complete. The content of the survey should cause no more discomfort than you would experience in your everyday life.

This link will take you directly to the survey: https://tinyurl.com/NSHD2021

Remote Study: Tiredness, body sensations, and emotions in people with MS

Investigators at the University of Georgia are conducting a survey and interview research study for people with multiple sclerosis (MS). This study can be completed remotely.
                This study seeks to examine a potential relationship between tiredness, body sensations, and emotions in people with MS who are physically active. You need to be 18 to 65 years of age with access to reliable internet and phone service to qualify. This study will take about 2 hours total of your time.
                If this is of interest to you, please contact Megan Ware to get started with surveys. Her email is mew77577@uga.edu and her phone number is 423-260-5045.
 

Survey: Patients taking Ocrevus (Ocrelizumab) and Rituxan (Rituximab)

Investigators at Harvard University in Boston are developing a clinical trial that aims to safely lower the doses of Ocrevus (Ocrelizumab)​and Rituxan (Rituximab) infusions in individuals diagnosed with Multiple Sclerosis (MS) and Neuromyelitis Optica (NMO).

They are gathering opinions of individuals who are/were taking Ocrevus or Rituxan in a short 5 question survey that should take no longer than 2-4 minutes to complete.

If you were diagnosed with MS or NMO and are/were on Ocrevus please click this link to take the survey: Ocrevus Survey​ or copy paste this URL: https://www.surveymonkey.com/r/22NYNV2

If you were diagnosed with MS or NMO and are/were on Rituxan please click this link to take the survey: Rituxan Survey or copy paste this UR L:  https://www.surveymonkey.com/r/2NMFVL8

If you have questions, please contact: nrab@mah.harvard.edu.

Public Call for Stakeholders to Guide Research Activities

The University of Washington Multiple Sclerosis Rehabilitation & Wellness Research Center (UW MSRehabWell) (https://uwmsrehabwell.org) is forming a group of engaged stakeholders to guide our research program and provide advice regarding research activities based on the diverse experiences and perspectives of those living with multiple sclerosis (MS).
 
We are looking for…individuals who have been diagnosed with MS or live with someone who has been diagnosed with MS and are at least 18 years of age. Individuals who identify as people of color, LGBTQ+, noncitizens, or have primary or secondary progressive MS are highly encouraged to respond to this call. Interested stakeholders from across the United States are invited to join; there is no requirement to travel.
 
Involvement can be flexible. Individuals will need to be able to attend a virtual meeting (using a digital device or phone) once per month. The group will conduct ongoing, periodic check-ins regarding what aspects you want to be involved in and the best ways for you to participate.
 
Potential activities through stakeholder participation include:
  • Draw upon your experiences and perspectives living with MS to provide input on a range of research activities targeting wellness, rehabilitation, symptom management, emotional health, and more (see our website for more details)
  • Engage in co-learning and co-education with a team of researchers, health providers, and others living with MS
  • Guide issues or raise concerns addressed in MS research
  • Learn about the research process
  • Learn about how the latest medical information is disseminated to health care providers
  • Help share research with the MS community
  • Partner with us to share our research findings with the MS community
Participation in stakeholder activities is flexible and may vary based on individual interests and availability. If you are interested in participating but have questions or concerns about your capacity to do so, or have other questions about stakeholder participation, please reach out.
 
If you are interested in learning more about stakeholder participation or would like to participate as a stakeholder, please email uwmsrehabwell@uw.edu.

Remote Study: Cognition and Mood in Older Persons with MS

We have very limited scientific knowledge about older persons with multiple sclerosis (MS), which is extremely harmful for their clinical care! Kessler Foundation is currently recruiting subjects for a research study. The study is completely remote (online and over the phone).
 
Scientists at Kessler Foundation are studying the effects of aging on multiple sclerosis (MS). We are seeking research participants for a study of persons over the age of 75 who either have MS or who will serve as healthy control subjects. The study is completely remote and will take about 2 hours. You will be compensated for your time.
 
If interested, please contact Michelle Chen, PhD, at mchen@kesslerfoundation.org or (973) 323-3746.
 
The Co-Principal Investigators are Michelle Chen, Ph.D. (Postdoctoral Fellow) and John DeLuca, Ph.D. (Senior Vice President for Research).

Online Survey: Caregivers' Experiences in Accessing Mental Health Treatment for their Children

Outpatient therapists at Children's Friend, Inc. in Worcester, MA are studying the experiences of families accessing mental health treatment for their children. We are especially interested in the impact medical conditions, such as MS, have on families and their children being able to receive appropriate mental health services. Caregivers include biological parents, adoptive parents, foster parents, step-parents, and kinship homes with children under the age of 18. The survey is nationwide and open to families who live anywhere within the United States. The hope is the survey results will assist mental health providers in tailoring services to meet families’ needs.
 
Participation & Procedure
Participation is voluntary and participants can stop at any time. The online survey will take 10 – 20 minutes to complete.
This study includes the following questions:
1) Background questions
2) Barriers to Treatment Participation Scale by Alan Kazdin
3) What would be more helpful in accessing mental health treatment
 
Anonymity and Confidentiality
Your name and no identifying information will be asked. You can open the survey through a secure link. The data will be stored in a secure location.
 
Anticipated Risks
There are minimal risks to this survey. If distressed, please call a mental health professional at the National Crisis Hotline at 1-800-273-8255 or by using the American Psychological Association’s psychologist locator: https://locator.apa.org/?_ga=2.39652515.1684085803.1519678909-1000026211.1494004804
 
Survey:
By clicking on this link and answering yes to the first question, which is the informed consent, consent is being provided to participate in this study.
For the survey in English - https://www.surveymonkey.com/r/PQFSMVV
For the survey in Spanish - https://es.surveymonkey.com/r/2DXD5TX
 
Questions can be directed to Kim Hager, LICSW, at khager@childrensfriend.org or Maria Martinez Calderon, LMHC, at mmartinez@childrensfriend.org, or you may contact us at Children's Friend, Inc. at 508-753-5425.

Exercise in Early Stage of MS

The Exercise Neuroscience Research Laboratory at the University of Alabama at Birmingham (UAB) is seeking for individuals diagnosed with MS for two years or less to participate in an online survey. This study's principal investigator is Professor Robert Motl, Department of Physical Therapy, School of Health Professions, UAB. This survey aims to understand the factors influencing physical activity and exercise participation in persons in the early stage of MS across the country. Participation in this survey will remain completely anonymous and voluntary. It will take approximately 35 – 50 minutes to complete this survey.

Participants can take part in the survey, if you: 
1) are 18 years or older, and  
2) have a diagnosis of MS for two years or less, and 
3) are fluent in English, and
4) have internet access, and
5) willing to complete the survey.

If you want to participate in this survey, please follow the link:
https://uab.co1.qualtrics.com/jfe/form/SV_bwRZy1IatWRf1wF

There will be some quick questions to assess your eligibility when you click the link.

For more information, please call 205-975-1306, or email Trinh (Lexi) Huynh at: enrl@uabmc.edu

More information is also available on our study’s website: https://sites.uab.edu/newlydiagnosedms/

Healthy Aging Through LifesTyle in MS

Researchers and staff at the Healthy Aging through LifesTyle in Multiple Sclerosis (HALT MS) Research Center at the University of Alabama at Birmingham (UAB) are recruiting older adults (60 and older) with MS to participate in HALT MS Registry. The HALT MS Research Center is funded by the National MS Society and directed by Professor Robert Molt, Ph.D., Department of Physical Therapy, School of Health Professions, UAB. The HALT MS registry is established as a communication channel that will help the HALT MS Research Center share with participants about our center activities, new study findings, events, and meaningful news related to aging and MS. The information collected through this registry will be kept confidential, and participants can opt-out of the registry anytime. The registration will take approximately 3 – 5 minutes to complete.

If you are aged 60 and older and would like to take part in this registry and receive information from the HALT MS Research Center, please follow the registration link below:
https://uab.co1.qualtrics.com/jfe/form/SV_3RcRnwQVX6iptU9

If you have any questions, please feel free to contact Lexi Huynh at 205-975-1306 or enrl@uabmc.edu

Research Input Needed – Adults with Multiple Sclerosis and clinical trial experience

The Center for Qualitative Studies in Health and Medicine at the Johns Hopkins Bloomberg School of Public Health is inviting diverse people to interview about their experiences with MS. A website showcasing a full range of experiences and insights will be developed to help other people facing similar situations, their families and friends, and their health care providers. 

You can participate in the study if you:  
1) have been diagnosed with multiple sclerosis, and  
2) were diagnosed at least 1 year ago, and  
3) have completed, dropped out or declined to participate in a clinical trial, and 
4) can comply with all study procedures and are available for the duration of the study 
 
The interview includes questions about your experience living with multiple sclerosis, diagnosis, treatment, and participation in clinical trials. It will last approximately 2 hours. Participants will be compensated for their time and effort. You will also receive a copy of the interview to review before the website is developed.  
 
Follow this link to a quick survey that will ask you some questions regarding study eligibility and demographic information: https://jhsph.co1.qualtrics.com/jfe/form/SV_6Vby6gNKY1gYVRH.

This information will only be accessed by the study team and will be used only to determine eligibility for the study. If you are eligible, someone from the research team will contact you.  
 
For more information please call or text (443) 863-9990, or email us at:
healthexperiences@jhu.edu 

Online Survey: Treatment Plans for People with Relapsing-Remiting MS

A Physician Assistant student from Rocky Vista University, Parker, CO, is conducting an online survey regarding people with relapsing-remitting MS and their experience with their individual treatment plans. The questionnaire should not take more than 5 minutes and is anonymous. The questionnaire contains 6 questions. The results of the study could help provide some insights on how providers can approach/improve patient compliance outcomes with patients suffering from RRMS. It could also provide insight on the importance of RRMS patients adhering to their treatment plan, regardless of the state with their disease. 
 
To participate, you must: 
 
-Be diagnosed with RRMS 
-currently receiving treatment for RRMS 
-Be able to read, type and understand English 
 
Click here for the survey

If you have any questions/comments regarding the study, please email mark.buys@rvu.edu.

Evaluating a Newly Developed Video for Education of People Newly Diagnosed with MS

A doctoral student (Doctor of Nursing Practice) at Grand Valley State University, who is a person with MS, is seeking the evaluation of a video as a form of education for newly diagnosed with MS.  She is looking for people with MS who would be willing to view the video and answer two short surveys.  The video is approximately 15 minutes, the pre-video survey is 3 questions and the post-video survey is 8 questions.  She is looking for feedback on both the content of the video and the satisfaction of video as a form of education for people with MS.
 
To participate, you must:
  • Be 18 years of age
  • Be diagnosed with MS
  • Be able to read, write and understand English
If you have any questions and/or would like to take part, please email mccrumbt@gvsu.edu.

Online Survey: Psychological Support

Researchers at University of Reading, United Kingdom, are conducting an online survey to find out the experience of psychological support in people with MS. The information obtained from this survey will be used to develop an intervention based on people’s experiences of psychological support since their diagnosis of MS, as well as their thoughts on what they would like in terms of content and how it is delivered. 
 
To take part in the survey, please click here: https://forms.gle/5YTssp4pDVFciYEe9

Bladder Symptoms Study (Washington, DC Metro Only)

Researchers at National Rehabilitation Hospital located in Washington, DC are currently screening individuals on-the-phone only to participate in our new study to:
1. Estimate healthy urine of those with a neurological diagnosis causing neurogenic bladder and;
2. Estimate the effect of an intravesical probiotic (a healthy bacteria) on urinary symptoms and on the urine of those with a neurological diagnosis causing neurogenic bladder. 

To qualify for this study you must be:
  • 18 years or older
  • Use an indwelling catheter
  • Diagnosed with: Multiple Sclerosis, Spinal Cord Injury, Stroke, Spina Bifida, or other neurological diagnosis.  
  • History of 2 or more episodes of urinary symptoms or infection in the past year
Once in-person research continues, participating in the study requires: one in-person screening/training, weekly online questionnaires about symptoms until symptoms are experienced. When symptoms are experienced, you will instill 2 or 4 doses of the probiotic through your catheter to combat urinary symptoms. Lastly, provide urine samples when no urinary symptoms are experienced, before and after an instillation.  Once the intervention of instilling the probiotic occurs and symptoms are recorded, you will complete the study.

If interested, call Margot Giannetti McCloskey  at 202-877-1071 or e-mail Margot.Giannetti@medstar.net 

The MotherToBaby Aubagio® (teriflunomide) & Pregnancy Study

The MotherToBaby Aubagio® (teriflunomide) & Pregnancy Study is being conducted by the Organization of Teratology Information Specialists (OTIS) and coordinated by the University of California, San Diego.

This study is observational, which means women who enroll will not be asked to take any medications or vaccines or change any part of their routine. Women who qualify for this study, will not only have the opportunity to interact with our expert staff who can provide additional support during their pregnancy, but they will also play a key role by helping us learn more about MS during pregnancy, and the safety of medications during pregnancy for their own benefit and the benefit of other pregnant women and their babies in the future.  

Women may qualify for this study if they are currently pregnant and:

  • Have been diagnosed with MS
  • Have taken/are taking Aubagio® or have chosen not to receive treatment

To learn more about participation in the study please call 877-311-8972, email MotherToBaby@ucsd.edu, or visit our website at MotherToBaby.org 

Prospective Investigation of MS in the Three Rivers Region (PROMOTE)

Researchers at the University of Pittsburgh are conducting a long-term, prospective, observational research study to understand what makes individuals with MS and related disorders differ from one another. Specifically, they aim to investigate the predictors of the individual differences in disease trajectory and treatment response using a wide range of biological, biometric, imaging, environmental, and clinical measurements.  Understanding the factors that influence disease trajectory and treatment response will pave the way to realize precision medicine and deliver individualized care. 
 
Eligibility:
  1. 7 years and older
  2. Diagnosis of multiple sclerosis or related disorders 
Minimal Requirement:
  • Answering questionnaires online, by phone or in person
  • Allowing the review of medical records. 
If you are interested in learning more, please contact the research coordinators by phone at 412-254-4883, or by email at msstudy2@pitt.edu.

MRI predictors of disease and disability progression in African Americans with MS - New York

Researchers at the Department of Neurology at the Icahn School of Medicine at Mount Sinai, Mount Sinai West are seeking volunteers of both African American and Caucasian ancestry 18 to 70 years of age to participate in a study to assess brain and spinal cord structure and function in people with MS using Magnetic Resonance Imaging. The purpose of the study is to find new ways to detect changes in the brain that may be associated with MS, and may help, in the future, to predict the course of the disease.

Participants will need to complete a study visit annually over a period of 4 years. Study visit will take approximately 3 hours. Eligible participants should have a diagnosis of MS, be fluent in English and willing to complete a study visit, including clinical examination and MRI annually over a period of 4 years. Study visits will take approximately 3 hours to complete. Participants will be compensated for their time and effort. They may also receive a CD with pictures of their brain and spinal cord. For more information email ingleselab16@gmail.com or call 212-824-9319 [GCO#; PI: Matilde Inglese, MD, PhD.

Workplace Experiences of People with Disabilities

Students at Emory University are conducting a research study designed to learn about workplace experiences of people living with disabilities, including multiple sclerosis. The goal of this study is to gather information on these experiences, to better understand how they affect employment inclusion, and to consider what solutions can help to cope with these experiences.
 
Participation involves a 6-minute survey. Below is the link:
https://bit.ly/AbilityInclusionXperience

If you want to get further information, please email abilityenabled@gmail.com

Validating a Mobile App for MS Research

Researchers are seeking to validate a new smartphone app, impactMS, a personalized tool to help track MS at home. If you have been diagnosed with Multiple Sclerosis and live in the southern California area, the University of Southern California MS center invites you to participate in the impactMS study. The study involves the installation of the impactMS app, and 4 visits to the USC MS Center. After the initial visit you will be asked to come back to the USC MS Center at 3 months, 6 months, and 12 months for traditional clinical research assessments performed by health care professionals. You will be compensated per completed study office visit.

Individuals who are diagnosed with multiple sclerosis may be eligible to participate if they are 18 years or older and have access to a smartphone. Please be aware that you need to have your MRI disc in hand before joining. If you’re interested in participating in this study, please contact Santi Decunto at aimslab@usc.edu or call (323) 442-3013 to get started.

App-Based Study on MS Symptoms

elevateMS is an iPhone app-based study designed to monitor and understand the variations in symptoms of Multiple Sclerosis or MS. Living with MS disease means coping with symptoms that may change daily. Yet these daily changes may not be tracked frequently enough. The elevateMS app will use questionnaires and sensor data from your phone, to help you track your condition 24x7, allowing you to review trends and share this information with researchers. elevateMS is run by Sage Bionetworks, a nonprofit research organization in collaboration with Novartis Pharmaceuticals Corporation.
 
Key Features:
●      Innovative activity-based measurements of MS symptoms that include walking few steps and finger tapping
●      10 minutes/week committment
●      Share insights with researchers
●      Get educated about symptom variations

Researchers are looking for participants who meet the following criteria:
  • 18 or older
  • U.S. resident
  • Have a personal iPhone (iPhone 4S or newer). The app requires iOS 8.0 or later, and is compatible with iPhone and iPod touch.
Click here to download the app from the Apple iTunes Store. For further information on this study, please visit our website at www.elevatems.org.
 
For question or concerns, please email elevateMS@sagebase.org or call toll-free 1-844-822-4707 or 206-667-2103.

​Retinal Lutein and Visual Health in MS

Researchers in the Department of Kinesiology and Community Health at the University of Illinois in Urbana-Champaign (UIUC) and Carle Hospital are conducting a study to assess the relationship between nutrition and eye health among people with Multiple Sclerosis.  Participation consists of two visits, each lasting 2 – 3 hours.  Participants will be asked to complete surveys, eye exams, a neurological exam, a blood draw, and EEG computer tasks.  Participants will also be asked to record their diet for 7 days and wear an activity monitor for 7 days between appointments.  Participants will be compensated.

Inclusion criteria: ages 45 – 64, ambulatory with or without assistance, and not be diagnosed with age-related macular degeneration.

For additional information please contact Alicia at (217) 300-1667 or lumesuiuc@gmail.com.

Caregiving Across the Lifespan

Researchers at Towson University are investigating how individuals’ caregiver experiences and personality may affect their mental and physical health when caregiving for those with chronic illnesses such as MS. Your participation in the study may help researchers and therapists learn more about the influences on mental and physical health of caregivers, and this could improve their work with those who provide the care for family members with chronic illnesses such as MS.
 
Researchers are looking for participants who meet the following criteria:
  • Are currently at least 18 years old
  • Have provided care for a parent or adult relative with MS for at least one month, regardless of the age at which the caregiver role began
The study consists of an online survey that takes about 30 minutes to complete.  To participate, please follow this link:   https://towsonpsychology.az1.qualtrics.com/jfe/form/SV_cA3cJPIMiFBymfH

The link will begin with an informed consent form, followed by the survey. 
If you have any questions or concerns before deciding to participate, you can contact Kim Shifren, Ph.D. at kshifren@towson.edu . This study was approved by the institutional review board at Towson University on 12/05/2016, protocol # 1612011461.

College Students and Multiple Sclerosis: Navigating the College Experience

Researchers from Central Michigan University are very interested in learning from college students of any age with MS. The purpose of the study is to learn about the techniques used to manage the college lifestyle and feedback regarding the effectiveness of various resources.

This is an anonymous online survey that will take approximately 10 minutes to complete.
 
https://www.surveymonkey.com/r/CollegeMS
 
If you have any questions or would like more information, please contact Dr. Holly Hoffman at gerki1hh@cmich.edu or 989-506-9651. Thank you!
 

REAL MS™: Personalized Medicine Research in MS, and More

REAL MS™ (Research Engagement About Life with Multiple Sclerosis) is a longitudinal, prospective study (that is, it will collect repeated observations of the same variables from now over a long period of time) of a cohort of people with multiple sclerosis (that is, it will study a group of individuals who share the characteristic of living with MS). It is designed to answer important questions about the heterogeneity of the experience of MS across the population of people who are living with the disease and about the factors that affect MS progression and treatment outcomes. The REAL MS™ study was initiated in August 2016 as the flagship research program of the iConquerMSTM patient-powered research network. The study will collect comprehensive data about demographics, overall health, quality of life, MS symptoms and treatments semi-annually via online questionnaires, and will from time to time invite its participants to reply to surveys on particular topics and/or to contribute biospecimens.

Over the course of the study, REAL MS™ intends to enroll thousands of people living with MS who are as reflective of the MS population as possible. All adults 21 years of age or older who live with MS and register for iConquerMS™ are eligible to participate in the REAL MS™ study. 

Register for this study by joining iConquerMS
 

​Mobility impairments and fatigue - COLORADO

Researchers in the Department of Health and Exercise Science at Colorado State University are exploring how differences in strength between the right and left legs may contribute to walking impairments and fatigue induced by walking in people with MS. The study will take place in the Integrative Neurophysiology Laboratory in the Department of Health and Exercise Science, on the Colorado State University campus. Two visits are required, during which tests will be completed including questionnaires, and tests to determine leg strength, handgrip strength, body composition, and walking impairments. Participants also will wear an ActiGraph to measure physical activity for seven days.
 
Click here for a screening form to determine eligibility

For more information, please contact Integrative Neurophysiology Lab at HES-inpl@colostate.edu or 970-491-7612.

Usage of Assistive Technology Devices

Investigators at University of Illinois at Urbana-Champaign are conducting a study to investigate what factors and personal characteristics impact the usage or discontinuance of assistive technology devices. This is an anonymous survey so participants will not be asked for any identifying information. It should take about less than 15 minutes to complete the questionnaire. 

Results are expected to help improve the prediction of modern IT-based assistive technology device potential usage or discontinuance rate among people with disabilities.
 
Click here for the survey 

For any questions or concerns, please contact Dr. David Strauser via phone at 217-244-3936 or via email at strauser@illinois.edu.

Research Study for People with MS - Kent, OH

This research examines thinking ability and fitness in MS. To participate, individuals must be diagnosed with MS and be willing to participate in two testing sessions lasting approximately two hours each. 
 
  • Tests of thinking skills: You will be asked to complete a short set of pen/paper and question/answer tests that assess your ability to focus and sustain your attention, learn and remember new information, and other types of thinking skills. 
  • Questionnaires: You will also be asked to complete paper-and-pencil questionnaires. The questions ask about your personal characteristics (such as health issues) as well as your exercise habits, mood, symptoms of pain and fatigue self-efficacy, and how all of these affect your day to day life. 
  • Physiological Testing: Baseline levels of your height, weight, and waist to hip ratio will be recorded today. Heart rate, blood pressure, tympanic body temperature, and cerebral oxygenation will also be recorded. 
  • Functional Testing: You will be asked to perform some functional testing to determine your fitness level. These tests will assess your cardiovascular fitness, and mobility. 
  • Activity Monitoring: You will be asked to wear an activity monitor daily throughout the study. The monitor can be worn on your wrist, waistband, shirt, or in your pocket throughout the day.
 
If you are interested, please contact kent.ms.study@gmail.com or call 330-552-8277.

Effects of Feedback Presentation on Fatigue and Learning - New Jersey

Researchers at Kessler Foundation are interested in learning whether different types of feedback (assessments of one’s performance on a task) might lessen fatigue in MS. Participants will complete pen and paper tests (4 hours) then complete a multiple-choice task during an MRI scan (1 hour) at Kessler Foundation in West Orange, New Jersey. Compensation will be provided.
 
Eligibility:
  • Must be between 18 and 55 years old
  • Must have a diagnosis of Relapsing-Remitting MS.
If interested, please contact Nancy Moore at 973-324-8450 or nbmoore@kesslerfoundation.org.

Emotional Processing and Relationships in MS - New Jersey

Researchers at Kessler Foundation are interested in learning how individuals with MS process emotions and how this affects relationships and quality of life. Participants will complete pencil and paper testing and answer questionnaires (a total of 5 hours which may be done in one or two visits). The participant’s significant other will also be asked to complete several questionnaires. Compensation will be provided. Healthy controls are also needed.
 
Eligibility:
  • Must be between 18-55
  • Must have no other neurological illness.
If interested, please contact Nancy Moore at 973-324-8450 or nbmoore@kesslerfoundation.org.

Investigators Seeking Tissue Samples Previously Obtained from People with MS and Similar Diseases

In order to discover the triggers of MS, National MS Society-funded investigators at the University of Utah are seeking to collect existing brain biopsy tissue from individuals nationwide who underwent a brain biopsy to diagnose an episode of “acute demyelinating disease,” including multiple sclerosis, acute disseminated encephalomyelitis, optic neuritis, or clinically isolated syndrome.  The researchers will arrange for the transfer of the tissue. No visits to the University of Utah are needed. Read more.

Researchers in California studying MS in Hispanic population

Investigators at the MS Comprehensive Care Center at the University of Southern California are examining the genetic clues linked to geographical origins that may be responsible for the clinical characteristics observed in Hispanics with MS. They are recruiting 300 individuals of Hispanic/Latino background. Participants will be asked about their ancestry and clinical characteristics via in-person questionnaire. A single blood sample for gene typing will also be obtained and sent for analysis. Participation is usually a single visit. This is an observational study. No drugs or interventions are used in this study.

For information, please contact contact the MS Center at (323) 442-6870 or mscare@usc.edu.

Vocational accomodations and MS

Investigators at the University at Buffalo are conducting an online longitudinal survey of individuals who have MS and are currently working. The goal of this research is to help patients identify possible vulnerabilities that may create employment problems. In this survey, participants will be asked about their work activities and problems they may have encountered. The entire survey will take less than 15 minutes to complete. Participants are being asked to complete the survey every few months so that any changes in
employment status can be confidentially identified. There is no direct compensation for this study.

For further information, please contact mscogsur@buffalo.edu.

Click here to go to the survey.

Rehabilitation of intention tremor in MS (Wisconsin)

The Integrative Neural Systems Laboratory at Marquette University is seeking subjects to participate in a research study to examine avenues for rehabilitation of intention tremor in multiple sclerosis.

 Seeking healthy participants over 18 years old with normal or corrected-to-normal vision
 Seeking participants with MS over 18 years old and moderate to severe intention tremor
 Time Commitment: up to six 2-3 hour sessions over 3-4 weeks
 Compensation will be provided.

Participants will be tested on a series of tracking tasks using a robotic handle to examine how movement control changes under different visual conditions.

The outcome of this study will improve understanding of the factors that contribute to intention tremor in MS and may provide insight into therapies to reduce intention tremor.

For additional information, please contact Scott Beardsley, Ph.D. (Principal Investigator) at 414-288-4448 or Megan Heenan (study representative) at 414-288-1592.

Provide Feedback on Accessibility to Google

The Google Accessibility Engineering Team is looking for persons with disabilities to become testers of new Google products with the purpose of providing accessibility feedback to the engineering teams at Google.  If deemed a fit, participants in the program will have the opportunity to share their thoughts on new products, interact directly with teams at Google via email, phone and/or video chat, all while helping to make products more accessible.   

For the pilot program, which may last up to one year, Google is looking for tech-savvy users who are at least 18 years of age and reside in the U.S.  Anyone interested in the program should fill out this survey, which is also linked below. 

Have questions about the program? Feel free to contact google-accessibility-trusted-tester@google.com.

Sign up form link:  https://goo.gl/forms/eVlMN8pTOJOXhUN22

Online Study of the impact of Pediatric MS on health and quality of life

Researchers at McGill University are currently looking for children and adolescents diagnosed with MS and their parents to participate in an online study about their MS. Children with MS and their parents will be asked to answer a web-based survey consisting of four short measures: the Patient Generated Index (PGI), an individualized measure; EQ-5D Youth version, a health utility index with 5 items; the KIDSCREEN-27, a 27-item quality of life measure; and the Faces Scale for mood, energy, and pain. The questionnaires will take no more than 15 minutes to complete. The survey is completely anonymous.
 
The inclusion criteria include diagnosis with MS before the age of 16, age between 8 years and 25 years old at time of survey, and fluent in either English or French.  Parents of children with MS are eligible to participate. If interested, to participate in the survey, please click on the following link: goo.gl/e2ekwU
 
For additional information, please contact Nikki Ow at xiao.ow@mail.mcgill.ca.
 

Understanding the Earliest Signs of MS - Colorado

The University of Colorado is conducting a study that will try to improve our
understanding of the very earliest signs of MS by looking at individuals at high risk of developing MS, especially young adults with relatives already diagnosed with MS.

You may be eligible to participate if you:
» Are 18-30 years of age
» Do not have a parent, sibling or child with Multiple Sclerosis
» Have not been diagnosed with MS and have no symptoms of MS
The visit will take place on the University of Colorado Anschutz Medical
Campus.

Please contact:
Neurology Research Partners at the University of Colorado Anschutz Medical Campus by calling (303) 724-4644 or emailing NeurologyResearchPartners@cuanschutz.edu.

Participate in a study examining brain differences in MS - Pennsylvania

You are invited to participate in a study examining structural and functional brain differences in MS. The primary goal of this study is to examine how the brains of individuals with MS who do not have a  history of depression are different from comparison groups (i.e., MS+Depression). Researchers will explore how any differences we find contribute to more problems with depression in MS and see how such differences might lead to better treatment options for individuals in either group. 
 
The study involves two telephone screens and a clinical visit at Penn State, University Park, which involves clinical interviews, cognitive testing, questionnaires, an MRI scan, and a saliva swab. The in-person visit
takes about 6-7 hours. Participants will be compensated, and some funds are available to help with travel. 
 
To qualify for this study, you must meet the following criteria: 
 
Inclusion Criteria: 
- Over 18 years of age
- Diagnosis of MS from a neurologist
- Fluent in English
- Able to participate in cognitive testing
- Able to undergo an MRI
- Able to travel to State College, PA
 
Exclusion Criteria: 
- History of OR current depression
- Current psychotherapy/counseling treatment for depression
- Unwilling or unable to consent
- Diagnosis of bipolar disorder or schizophrenia 
- Substantial neurocognitive impairment (Dementia)
- Suicidal ideations
- Contraindications for MRI scan (e.g., metal in your body)
 
For information, please ontact Dr. Peter Arnett and his research team at the Imaging and Depression in MS Project at:814-865-5578 or depression.imaging.study@gmail.com

Registry: Family Caregivers of People with MS and other Ilnesses

Researchers from Kent State University College of Nursing are seeking family caregivers of loved ones with serious illness such as MS for a caregiver registry. Enrolling in the registry is voluntary and allows researchers to contact you if a research study becomes available. Prospective registry participants must meet the following criteria:
  • A caregiver for a loved one with a serious illness, such as MS
  • Be age 18 or over
This registry has received ethical approval from the Kent State University Institutional Review Board (IRB). You can withdraw from the registry at any time.  To learn more about and to add your name to the registry, visit the website at https://www.kent.edu/caregiver/family-caregiver-registry.

For more information, you can contact the researcher at dhansen1@kent.edu.

Falls and Fear of Falling in Adults who Require Wheelchairs for Locomotion

People with MS are invited to participate in a research study entitled, “Falls and Fear of Falling in Adults who Require Wheelchairs for Locomotion.” The purposes of the study are to determine 1) if fear of falling predicts the number of falls that occur in adults with neurologic conditions who use wheelchairs full-time for mobility inside and outside their homes, and 2) the incidence, circumstances, and consequences of falls for these adults.

To participate you must be an adult who:
  • Is at least 18 years old
  • Has a neurological diagnosis (such as multiple sclerosis) for at least 6 months
  • Use a wheelchair (manual or power) at least 75% of your mobility time inside your home and 100% of the time outside your home.
  • Has a computer with internet access.
  • Is able to read and understand English.
If you are interested in completing an anonymous on-line survey about your medical condition, falls, risk of falling, and fear of falling, please click on this link: https://www.psychdata.com/s.asp?SID=183112

It will take you up to about 20 minutes to complete it. People who complete the survey will be eligible for a prize drawing.

People who live in the greater Houston area and agree to be contacted for in-person testing of 1 transfer in/out of their wheelchairs and sitting balance will be compensated after consenting to and completing this testing that requires no more than 1 hour.

Please contact Carolyn Da Silva, PT, DSc at cdasilva@twu.edu or 713-794-2087 for more information or questions. She is a professor in the School of Physical Therapy at Texas Woman's University and physical therapist at the post-polio out-patient clinic at TIRR Memorial Hermann Rehabilitation and Research in Houston, Texas.

Study of the Feasibility of an Individualized Measure of Disability for Children and Adolescents with Multiple Sclerosis

Researchers at McGill University are currently looking for children and adolescents diagnosed with MS and their parents to participate in a study about their MS. They want to know what is important to their quality of life and how children with MS and their families prioritize these concerns. They have developed a measure of disability for children and adolescents with MS and would like to assess the feasibility of this measure, the Pediatric MS Index (PMSI). The aim of this study is to assess the extent to which the PedsMSI can be used in clinical settings with children and adolescents with MS and parents of children with pediatric MS.

The inclusion criteria include children and adolescents with MS, aged between 8 years and 18 years old and fluent in either English or French. Parents of children with MS are eligible to participate. You will be required to answer the PedsMSI twice and complete an interview. Those who complete the interview with us will be compensated. They hope to recruit 30 children with MS and parents of children with MS.

If you are interested in participating in this study or need more information, please email Nikki Ow at xiao.ow@mail.mcgill.ca

Monitoring Mobility in Daily Lives of People with MS - OREGON

The Oregon Health & Science University’s Balance Disorders Laboratory is recruiting participants for a study looking to measure gait during daily activities using small, body-worn sensors.

This study requires:
• a single visit lasting about 3 hours in which gait and balance is tested
• wearing movement sensors at home for one week
• fall reporting for up to 12 months via bimonthly online surveys
• participant will be compensated

In order to qualify for this study individuals must be between the ages of 21 and 65 years old and have:
• a confirmed diagnosis of relapsing remitting or progressive MS
• mild-to-moderate MS-associated disability
• complaints about one's mobility

Contact Graham Harker at 503-418-2601 if you are interested in participating.

Physical Activity, Mindfulness, and Health

Researchers in the Department of Rehabilitation and Movement Science at the University of Vermont are interested in better understanding the attitudes and beliefs around physical activity, mindfulness, and other health-related behaviors in people with MS. This information can help inform practitioners in the design and implementation of more effective health promotion and activity programming.
 
The survey should take 30 to 40 minutes to complete. All information will remain anonymous and completion of the survey implies your consent to participate.
 
Please click the link below to access the survey. If you have any further questions, contact Dr. Susan Kasser at (802) 656-7742 or Susan.Kasser@med.uvm.edu
 
https://survey.uvm.edu/index.php/588412?lang=en

Participants Needed For Study On Job Crafting - New Hampshire

Researchers at the University of New Hampshire are looking for volunteers to take part in a study to develop and test a program to help people to re-envision and refine aspects of their job. You may be eligible to participate if you 
 
(1)    Reside in New Hampshire or Southern Maine;
(2)    Are 18-64 years of age;
(3)    Experience a physical or health condition that limits your work performance;
(4)    Are currently working or returning to work;
(5)    Have at least 1 year of work experience; and
(6)    NOT participating in an workers compensation program

Your participation would involve completing two interviews and weekly job crafting exercises and online surveys for six weeks. In appreciation for your time, you will be compensated.

For more information or to volunteer for the study, please contact:
Kristin King
Occupational Therapy Department
University of New Hampshire
at
(603) 862-1924
Email: kristin.king@unh.edu 

Cognitive Testing Study of Multiple Sclerosis - New Hampshire

Researchers at Dartmouth-Hitchcock Medical Center are currently enrolling participants in a study of cognitive testing for MS. This study compares computerized and in-person cognitive testing, to see how well results match.
 
What you would do as a participant in the study:
  • Complete assessments of your sensory, motor, and cognitive abilities both on paper and on the computer.
  • Provide demographic, medical, and other background data in questionnaires completed at home before testing and in person during your visit.
How long does it take?
  • Approximately 4 hours
Who is eligible?
  • People with relapsing-remitting or secondary progressive multiple sclerosis OR
  • People who do not have MS to serve as healthy control participants.
  • All participants must be between 25 and 59 years old.
Who is not eligible?
  • People who have another major neurological disorder.
  • People who have completed cognitive testing within the past year.     
  • Other exclusions may apply.
  • A telephone screen for interested participants will be offered to assess eligibility.           
Nominal financial compensation is provided.
 
For more information about this study please contact:
Emily Geiger
(603) 650-4536
emily.j.geiger@hitchcock.org

Work Health and Life Survey

The research associated with this survey seeks to improve workplace culture and understanding for those with chronic illness.The survey is completely anonymous and any information gathered will only be used for academic purposes.It takes approximately 7 minutes to complete.

Entrance criteria: participants must be 18 years or older, work at least 25 hours a week, and have been medically diagnosed with one or more chronic illness. Only surveys that have an authorized consent form (1st page of the survey) will be added to analyzed data.

Click here for the survey:
https://www.surveymonkey.com/r/WorkplaceWellness123

For more information, please contact: 
Contact Name: Christina Haugen Porter
Vanguard University of Southern California
Phone:760-905-1986
Email: chaugen.porter.research@gmail.com

Pregnancy and MS Study: New England

Investigators at Brigham and Women’s Hospital in Boston are recruiting women with MS for the Pregnancy and Multiple Sclerosis Research Study (PREG-MS). If you live in the New England area, have MS and are now pregnant or plan to become pregnant soon, you may qualify for this PREG-MS study. Researchers want to understand the effects of MS on pregnancy and pediatric development, and the effects of pregnancy on the course of MS. If you participate they will collect health information from you via telephone interviews (every 3 months during and after pregnancy, for 3 years). They also will obtain medical records from your doctor's office. If you would like the opportunity to participate, please contact Dr. Maria Houtchens at 617-525-6576 or Jeta Pol-Patil at 617-732-5562, or email jpol-patil@bwh.harvard.edu for more information.

Recently-diagnosed individuals and participants in the Sonya Slifka Longitudinal Multiple Sclerosis Study needed for MS Survey

Researchers are recruiting people who were diagnosed with MS in the past 24 months and  participants in the Sonya Slifka Longitudinal Multiple Sclerosis Study for a research study on their use of disease modifying therapies to update information collected in 2009 in the Slifka Study. The Slifka Study was started by the NMSS in 2000 and is named for a woman with MS whose family helped support the project.  Since then, the Slifka Study has interviewed over 4,600 individuals with MS, most of them many times. Researchers are again interviewing Slifka study participants, and are also asking new participants to join this research study.
 
The interview will be on the telephone and last about 35-45 minutes. Participation is, of course, voluntary and all information collected will be kept confidential.  Volunteers should feel comfortable completing a phone interview in English.
 
The Slifka Study has helped us understand the impact of MS on patients and their families, how to manage it more effectively, and how to advocate more successfully for better access to health care.
 
If you were diagnosed in the past 24 months or you are a Slifka Study participant and want to participate or learn more, please click this link for additional information and to register 

https://msresearch.gryphonscientific.com/
 

The impact of MS on language/communication skills and health-related quality of life

Researchers at the University of Sydney are conducting an international research study investigating the impact of MS on language and communication skills and health-related quality of life. This study requires participants to complete an anonymous online questionnaire. The questions cover a range of topics including MS subtype, language and communication skills, wellbeing, fatigue, quality of life, social and support networks, and thinking and memory skills. The questionnaires takes about 30-45 minutes to complete. The information gathered will help us better understand how often people with MS experience communication difficulties, what these communication difficulties may be, and how they impact on health-related quality of life and everyday activities.
 
Participants must meet the following criteria:
  • 18 years of age or above
  • Have a diagnosis of MS (any MS subtype)
If interested, to participate in this study, please click on the following link: https://redcap.sydney.edu.au/surveys/?s=PCR8ND4T9D. Your time and participation is very much appreciated.
 
If you have any questions, please contact the research team on e-mail at: selw5849@uni.sydney.edu.au. To access the Patient Information Statement, which describes the study in full, please click on the questionnaire weblink.

Perception in Multiple Sclerosis

We are conducting a research study being done by Dr. Ruth E. Propper a faculty member, at the Cerebral Lateralization Laboratory, at Montclair State University. We are interested in learning about perception in individuals who have been clinically diagnosed with Multiple Sclerosis. If you have not been clinically diagnosed, that is, diagnosed by a doctor, with multiple sclerosis, please do not participate. We are only recruiting people who are 18 years old or older; if you are younger than 18 years old, please do not participate.
 
If you choose to be in the study, you will complete a survey. This survey will help us learn more about perceptual experiences in multiple sclerosis. The survey will take about 10 minutes to complete. Some people who complete this survey may be invited to complete another survey. If you are invited to complete another survey, you will receive additional information.
 
If you are interested in learning more, or in participating in the survey, are 18 years old or older, and have been clinically diagnosed with Multiple Sclerosis, please click on the link below or paste it into your browser.
https://montclair.co1.qualtrics.com/jfe/form/SV_4HZVtgZDeiz6i7r
 

Health care experiences of people with walking difficulties and cancer

Researchers are interested in learning about the health care experiences of people who have difficulties with walking and who later in life develop certain types of cancer.

Researchers at the Health Policy Research Center at Massachusetts General Hospital are running this study, which is funded by the National Institutes of Health. Those who complete the interview will be compensated.

To volunteer, you must:

· Be between 21-74 years old

· Speak English and live in the United States

· Have had problems walking or no longer be able to walk for at least one year before your cancer diagnosis. Because of this walking problem, you must have had trouble getting around your home, taking a bath or shower, dressing, using the toilet, or feeding yourself

· Have had cancer – except for melanoma– within the last ten years

· Have no other cancer history

Your participation in the interview is voluntary. The interview will take up to two hours, but you can stop at any time and not answer any question you don’t want to answer. The team will audio-record the interview to review, but will delete the recording when the project is over. Nothing will happen to your health care services you receive if you decide not to take part. Your identity will be kept confidential and your name will not be connected to anything you say in the interview.

If you have questions or would like to participate, please contact Nicole Agaronnik at 617-724-0930 or email her at nagaronnik@mgh.harvard.edu. Please leave your name, e-mail address and/or phone number so that the team may contact you.

Health beliefs and physical activity in persons with MS

Researchers at the University of Alabama at Birmingham are conducting an online study asking about health beliefs and physical activity in persons with MS over the age of 18. Specifically, previous research reports significant relationships between social cognitive variables such as social support, self-regulation, motivation and physical activity in adults from the general population. This study is an investigation of various social cognitive factors that may be associated with levels of physical activity in persons with MS. The survey takes about 40 minutes to complete, and answers will be used to help inform future multi-level physical activity interventions for persons with MS.

If interested, to participate in this study, please click on the following link: https://uab.co1.qualtrics.com/jfe/form/SV_bwRZy1IatWRf1wF

If you have any questions, please contact the research team on e-mail at: enrl@uabmc.edu.

Emotional and Social Impact of Autoimmune Diseases

Scott Weitman, a high school student at Yorktown High School in Westchester County, NY, had lived with Alopecia Areata, an autoimmune disease that causes him to lose his hair. This has been difficult as it causes him to look different and has therefore made social life during school, more challenging.  Understanding what it is like for people to deal with an autoimmune disease has motivated him to design a project to help others. 
 
What will you do during this study?
  1. Participants will complete an anonymous, online survey through Google forms.  
  2. The survey includes answering questions based on the emotional, social, and coping aspects of autoimmune diseases. 
  3. Total time commitment is around 15 minutes.
Qualifications for the survey include:
  1. Having an autoimmune disease.
  2. All age groups are allowed to complete the survey.
 
If you have any questions and/or would like to receive the results of the survey in the upcoming months, please email scott.weitman@yorktown.org with the subject as “Please Send Survey Results.”  

Link to Survey:
https://forms.gle/feYH7ymFZucr5Eyr5
 

Developing an app for managing health and well-being

Researchers in the Health Promotion and Rehabilitation Lab at the University of Illinois are seeking assistance from people who have MS as well as other comorbidities. This research focuses on developing a science-based app empowered by your search knowledge that will help you communicate with health care providers, peers, family, and care-givers. Participants must be 18 years old or older and meet screening qualifications.
 
This study will be conducted in two phases. In the first phase, qualified participants will complete a few surveys and then meet for an online video conference (and if you have/would like to include a caregiver they are also welcome) for about 60-90 minutes. During this meeting you (and your caregiver) will be asked what features and information you would find helpful in the app. Both you and your caregiver will be compensated.
 
During the second phase, in April of 2020, once the app is developed based on your and your caregivers’ input, we will have another online video conference to discuss any additional feedback you have about the app. After completing the second phase, both you and your caregiver will also be compensated.
 
If you are interested, please fill out the online intake form at: https://go.illinois.edu/MSeHealth

For more information and to check if you qualify, please contact the Health Promotion & Rehabilitation Lab via any of the following ways:
email: MSeLibrary@illinois.edu
web: go.illinois.edu/MSeLibrary
call toll free:844-800-9972

Healthcare professionals needed for MS research exploring the perceptions around psychosocial interventions

Natalie Garnett, Trainee Health Psychologist at the University of the West of England is carrying out a doctorate study titled: A qualitative study exploring psychosocial professional’s perceptions of the acceptability and effectiveness of psychosocial interventions in Multiple Sclerosis care. The aim is to gain an understanding of how healthcare professionals think and feel about the psychosocial interventions they deliver for people with MS. This study has received ethical approval from the University of the West of England and involves participants completing an online survey consisting of 12 questions followed by some demographic questions, taking around 15/20 minutes to complete.

Participation in this study will be of great importance in helping towards gaining a better understanding of healthcare professional’s perceptions of psychosocial interventions for people with MS. This could help guide future training, education and the development of psychosocial interventions. As a thank you for completing the survey, participants will have the opportunity to be entered into a prize draw. 

For further information, healthcare professionals can contact Natalie Garnett at Natalie2.Garnett@live.uwe.ac.uk
 
To participate in this study, healthcare professionals can click the link below
https://uwe.eu.qualtrics.com/jfe/form/SV_1ReQXSdElBkbAs5

Online Survey of Fatigue in MS

A researcher at the University of Michigan is doing a survey to learn more about fatigue in multiple sclerosis (MS).

Who
  • At least 18 years old and diagnosed with MS (all subtypes included)
What to expect:
  • You will fill out an online survey one time on fatigue, using the following link: The survey will take approximately 30-40 minutes to complete.
https://umichumhs.qualtrics.com/jfe/form/SV_eJRYpAZMSescIC2
If you have any question, please contact the study team at 734-936-2844 or  Kratz_Lab@med.umich.edu.

Participants who complete the survey can enter a raffle for compensation.

Online Study of the Impact of Multitasking on Community Mobility and Fall Risk

Researchers at the University of Vermont are interested in exploring how performing cognitive and mobility tasks together influence fall risk and community involvement in adults with MS. Interested individuals will be asked to complete a survey that includes questions regarding walking ability, multitasking, community participation, fatigue and energy, mobility confidence, physical activity, and quality of life.

Participants should be people diagnosed with MS, over the age of 18, who are ambulatory with or without assistive devices.

This survey should take about 30-45 minutes to complete. Your participation is entirely voluntary and the survey completely anonymous.

If interested, please click here for the survey: https://redcap.med.uvm.edu/surveys/?s=MKR8P9EMT7
 
Any questions concerning the research or your participation should be directed to the study’s principal investigator, Dr. Susan Kasser, Department of Rehabilitation and Movement Science, University of Vermont, Burlington, VT at Susan.Kasser@med.uvm.edu

Online Survey: Stressors and Challenges Related to COVID-19

Researchers at Virginia Commonwealth University are investigating protective factors that help people with MS deal with daily hassles and chronic stressors relating to COVID-19, and improve the physical and mental health of people with MS. Findings of the study can guide the development and validation of  empirically supported stress management, health promotion, and psychosocial interventions for people with MS.

The first 300 participants will be compensated.

Participants must be between the ages of 18 and 65, and have been diagnosed with MS.

The survey will take approximately 30 minutes to complete.

Click here for the survey

If you have questions, please contact Kanako Iwanaga, Ph.D., CRC, LPC at iwanagak@vcu.edu.

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