Black MS Experience Program Series

Being Black with MS carries unique challenges and experiences – from scientific and clinical differences in the disease itself to inequities in the healthcare system and more. The Black MS Experience Program Series is an opportunity to connect with others who understand the distinct experience of life with MS as a Black person. Through special program experiences, we will forge powerful connections, learn from leading scientific and healthcare experts, and give voice to the unique needs of the Black community living with this disease.

Save the date for the 2023 Black MS Experience Summit on June 14 and 15! Registration will open in the spring. More details are coming soon.

We are excited to continue our commitment to the Black MS Community and help amplify voices, build connections, and support those affected by MS through a unique virtual program experience.

The 2022 Black MS Experience Summit took place on June 15-16. The sessions are accessible on-demand below. Learn more about navigating and overcoming challenges in the healthcare system so you can get the care you need.

This program is accessible to individuals with hearing impairments. Videos from all sources have closed captioning features and other materials are readable.

The Black MS Experience Summit breakout sessions aim to create a safe space to raise awareness and build connections. Breakout session topics include:

• MS Diagnosis in the Black Community: Amber Jobe, AGNP-C, Adult-Gerontological Neurology Nurse Practitioner, International Neurorehabilitation Institute
  • Approach to MS Medications for the Black MS Community
  • Cognition Testing for MS
  • Managing Heat with MS
• Understanding Clinical Trials and Studies: Kiel Telesford, PhD, Instructor in Neuroscience, Brain and Mind Research Institute, Weill Cornell Medicine
  • Diet and Immune Response
• Removing the Stigma of Mental Health Services: Cherese M. Alcorn, MSW, LCSW, Psychotherapist and Entrepreneur
  • Self-Advocating During Healthcare Appointments
• Challenges that Impact MS Care: Jacqueline Rosenthal, MD, Neurologist, Andrew C. Carlos Multiple Sclerosis Institute
• Nurturing Your Emotional & Spiritual Health: Mana Carter, PhD, Rehabilitation Psychologist, MedStar National Rehabilitation Hospital
  • Depression in the Black MS Community
• Managing Long-Term Outcomes: Aljoeson Walker, MD, Neurologist, MUSC Medical Center
  • Spinal Tap for MS
  • Understanding a MS Diagnosis
  • Treatment for Every Lifestyle
• Understanding Treatment Goals: Stacyann Smith, MSN, AGNP-C, MSCN, Nurse Practitioner, Weill Cornell Medicine
• Exploring Complementary & Alternative Treatments: Lynne Shinto, NP, MPH, Professor, Department of Neurology, Oregon Health & Science University

We would like to thank all our 2023 program contributors.

Convening Contributor

    

Contributors