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Support and Resources for Individuals with HAM

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American Academy of Neurology (AAN)

AAN offers a free subscription to their patient-focused magazine, Brain & Life, that provides patients and their caregivers with credible, up-to-the-minute, balanced coverage of the latest advances in neurology research and treatment. Written in concise and easy-to-understand language, the articles help patients make informed decisions about treatment options and living with a wide-range of neurologic disorders.

National Organization for Rare Disorders (NORD)

NORD (rarediseases.org) provides services for patients and their families, rare disease patient organizations, medical professionals, and those seeking to develop new diagnostics and treatments. They support every member of the rare disease community with programs and services focused on one ultimate goal: to improve the lives of individuals and families affected by rare diseases.

Other resources

  • Pubmed is the National Library of Medicine's searchable database of medical literature and lists of journal articles.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

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