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Support and Resources for Individuals with HAM


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American Academy of Neurology (AAN)

AAN offers a free subscription to their patient-focused magazine, Neurology Now, that provides patients and their caregivers with credible, up-to-the-minute, balanced coverage of the latest advances in neurology research and treatment. Written in concise and easy-to-understand language, the articles help patients make informed decisions about treatment options and living with a wide-range of neurologic disorders.
Call 800-879-1960 
or 612-928-6000 (International), fax 
201 Chicago Avenue
, Minneapolis, MN 55415

National Institute of Neurological Disorders and Stroke (NINDS)

NINDS collects and disseminates research and information related to neurological disorders.

NIH Neurological Institute

P.O. Box 5801
, Bethesda, MD 20824
Call (toll free) 800-352-9424 or 301-496-5751

For access to free Telecommunications Relay Services (TRS) for people with hearing or speech impairments, dial 7-1-1 on your phone.

National Organization for Rare Disorders (NORD)

NORD ( provides information for patients and families, mentoring for patient organizations, advocacy for the rare disease community, research grants, and patient assistance programs.

  • NORD has compiled resources that may be useful to individuals and families affected by rare diseases.
  • The NORD Rare Disease Database provides reports in patient-friendly language on more than 1,200 rare diseases. Each report provides a basic introduction with links to resources for additional information and assistance.

Email Call toll free / voicemail only 800-999-NORD(6673), 203-744-0100, 
TTY 203-797-9590, fax 203-798-2291
55 Kenosia Avenue Danbury, CT  06810

Other resources

  • Pubmed is the National Library of Medicine's searchable database of medical literature and lists of journal articles.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.