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Support and Resources for Individuals with Transverse Myelitis


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American Chronic Pain Association (ACPA)

The ACPA has offers peer support and education in pain management skills to people with pain, family and friends, and health care professionals. The information and tools on their website ( can help you to better understand your pain and work more effectively with your health care team toward a higher quality of life.
PO Box 850, Rocklin, CA  95677-0850
(toll free) 800-533-3231 or 916-632-0922

Christopher & Dana Reeve Paralysis Resource Center (PRC)

The Christopher and Dana Reeve Paralysis Resource Center serves people affected by paralysis, family and friends, and healthcare professionals. It's a national source of information for education materials, referrals, and information to promote health, community involvement, and quality of life for all people affected by paralysis including those affected by transverse myelitis.

They offer a comprehensive lending library of materials from all over the United States on all topics related to paralysis; also available electronically on their website ( They publish the "Paralysis Resource Guide", a free 366-page book containing contacts and connections for people living with spinal cord injury.
Short Hills Plaza
636 Morris Turnpike , Suite 3A, Short Hills, NJ  07078
800-539-7309 or (international) 973-467-8270

National Institute of Neurological Disorders and Stroke

NINDS collects and disseminates research and information specific to transverse myelitis.

NIH Neurological Institute

P.O. Box 5801
, Bethesda, MD 20824
Call (toll free) 800-352-9424 or 301-496-5751

For access to free Telecommunications Relay Services (TRS) for people with hearing or speech impairments, dial 7-1-1 on your phone.

National Rehabilitation Information Center (NARIC)

NARIC ( is the library of the National Institute on Disability and Rehabilitation Research (NIDRR). The service collects, catalogs, and disseminates the articles, reports, curricula, guides, and other publications and products of the research projects funded by NIDRR. NIDRR funds more than 250 projects each year that conduct research on a wide range of issues including technology, health and function, independent living and capacity building.
8201 Corporate Drive, Suite 600, Landover, MD  20785
301-459-5900 or 301-459-5984 or (toll free) 800-346-2742

Transverse Myelitis Association

Founded in 1994, the Transverse Myelitis Association’s goal is to improve the quality of life of individuals diagnosed with rare neuroimmunologic disorders including acute disseminated encephalomyelitis (ADEM).

  • Offers and provides information about support services such as a newsletter, family camp and support groups
  • Convenes international symposia on rare neuroimmunologic disorders and funds a clinician-scientist fellowship

The Association's website ( includes information on symptoms, diagnosis, treatment and prognosis of ADEM, a listing of clinical trials, a message forum, and physician network. or 614-766-1806
1787 Sutter Parkway, Powell, OH 43065-8806